Hi everyone, my name is Karina, and I am a journalist, advocate and fellow EDSer. You might know me through my film ‘We Are Visible,’
a documentary about EDS that I produced in 2019.
John, the CEO of EDS Awareness and a dear friend of mine, asked me to send out this new newsletter to you, which will from now on arrive in your inbox every month. It will include more useful information about all things EDS:
resources, important events, articles and more.
I plan to make this a place for us to connect and hope to share some insightful information with all of you.
With this first newsletter, I want to introduce myself and my work to you. In the future, however, I will focus on content that interests YOU or share YOUR work.
So please connect with me (via the links below) and tell me what you are interested in, send me articles you wrote or read, and let’s make this a place for every person with EDS.