EXCITING ANNOUNCEMENT!
An anonymous donor has presented us with a $1 million gift to jumpstart groundbreaking genomic research into genetic cause of hypermobile Ehlers-Danlos syndrome (hEDS), a rare, degenerative, and all-too-often disabling connective tissue disorder.
This is the single largest gift in the 33-year history of the Ehlers-Danlos Society, and the largest individual gift in the history of hypermobile EDS research.