Author Archive
Posted on June 7, 2016
Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com TOPIC: “All in Your Head”: The Problem of Psychogenic Diagnosis for Ehlers-Danlos Patients PRESENTER: Diane O’Leary, PhD Dr. O’Leary is currently an Associate Adjunct Professor in philosophy at University of Maryland University College Click IMAGE for the recording of this presentation. Click here for the […]
Posted on June 1, 2016
Tuesday June 14, 2016
Live Webinar at 7:30 pm EDT
Dr. Lawrence Afrin addresses
“Mast Cell Activation Syndrome”
in Ehlers-Danlos patients.
Posted on May 17, 2016
Listen to this summary of the results
Posted on May 1, 2016
Available now to print through Vistaprint! This new EDS brochure is designed for general awareness of EDS. It’s suitable for doctors, teachers, and relatives who just don’t “get it”.
Posted on April 29, 2016
Click here to learn about the PT book that is helping EDSers throughout the US! For every purchase made through the following link, $1.00 will be donated to EDS Awareness programs.
Posted on April 28, 2016
. . Physicians are invited to the Wellapalooza 2016 Physicians Learning Lunch. . . . This an integrative health and wellness conference on June 10th -12th, 2016. While Wellapalooza is more a patient-focused conference, it most certainly is open to all healthcare providers as well. Additionally, we are holding a Physicians Learning Lunch in conjunction with Wellapalooza 2016 […]
Posted on April 28, 2016
Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com TOPIC: “Cognitive Behavioral Therapy as a Coping Skill for EDS” PRESENTER: Sara Williams, Ph.D. — Pediatric Pain Psychologist and Clinical Director of the FIRST Program for Pain Rehabilitation Cincinnati Children’s Hospital Click IMAGE for the recording of this presentation. Click here for the link to the […]
Posted on April 21, 2016
This website and its free programs are dedicated to the memory of Carol and thousands like her – who suffer from undiagnosed Ehlers-Danlos… We were married for 41 years. You’d think that after all of that time you would know everything there was to know about a person. – I knew Carol was a […]