Author Archive
Posted on April 19, 2016
Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com . . . . TOPIC: “Mast Cell Activation Syndrome in EDS Patients (Part 2)” . . PRESENTER: Anne Maitland, MD, PhD – Director for Comprehensive Allergy & Asthma Care and the new Mast Cell Activation Center of New York Click IMAGE here for a link to […]
Posted on April 10, 2016
Colorado EDS Awareness Month Proclamation. Justin and Nancy, leaders of the Denver EDS Support Group, received their Proclamation. There is still time to get your Ehlers-Danlos Awareness Month Proclamation request sent to your state or local officials. . . Proclamation sample. http://www.ehlersdanlosnetwork.org/May.html . . Proclamation Contact information Click here for a spreadsheet with contact information […]
Posted on April 10, 2016
Alaska Ehlers-Danlos Syndrome Awareness Month Coloring Competition. Start Date: May 1, 2016 at 12:00 am End Date: May 31, 2016 at 11:59 pm Rules: Attached you will find a picture of a zebra bust that was designed and drawn by the artist Katie Zamudio, Doodlebug Coloring Books. Starting May 1, 2016 at 12:00 am […]
Posted on April 10, 2016
NOTE: Please register early. A limited number may attend live, and a free recording of the entire session will be provided for later replay. Instructions: – When you click the “registration link” on the announcement page, you will be asked to register for the meeting. . . Insert your name and email address, then […]
Posted on April 4, 2016
This month is Ehlers-Danlos syndrome awareness month. It’s a connective tissue disorder with no cure. Dr. Rob is “in the house” to give us details on how we can help those suffering from this often-painful condition. Andrea Julian, a leader of the Dayton Ohio EDS Support Group is interviewed. Click here for the Dayton, Ohio EDS […]
Posted on April 3, 2016
STATUS: World-wide EDS Awareness Survey — A summary booklet is currently being distributed to doctors and attendees at the EDSI Symposium in New York City. We received > 2500 responses from 26 countries. The data collected from this survey is being analyzed and will be presented in our upcoming webinar scheduled for May 17, 2016. WEBINAR […]
Posted on April 2, 2016
Hypermobile Ehlers-Danlos Syndrome Educational Session at Cincinnati Children’s Hospital Medical Center Please join us for an hour long session hosted by Dr. Derek Neilson discussing the diagnosis and management of hypermobile Ehlers-Danlos Syndrome (EDS). Dr. Neilson will review the criteria used to diagnose hypermobile EDS, and discuss general recommendations that help patients with EDS. He will […]
Posted on April 1, 2016
We are hosting our first annual EDS picnic this year, on May 15, 2016, with a goal of picnics across the nation. We have already stretched beyond the Ohio border and have picnics going on in Kentucky, and more states will join quickly as news spreads. Through educational programs, support groups and activities like this picnic we […]
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