Author Archive
Posted on July 14, 2016
Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com TOPIC: “EDS & Pain” PRESENTER: Dr. Norman Marcus Click IMAGE for the recording of this presentation Click here for the slides used during this presentation INVITE YOUR FRIENDS: Spread the knowledge! Please post this announcement on Facebook, and forward this to others who […]
Posted on July 4, 2016
By Richard Salit, Journal Staff Writer. Ellen Lenox Smith’s recurring injuries and ailments were as baffling as they were disabling. Some doctors thought they might even be psychological. Why was she always in such pain? Why did she have difficulty swallowing? Why did she keep tearing cartilage and ligaments in her knees and shoulders? And […]
Posted on June 29, 2016
By Ken Barhorst. Ten-year-old Jarrett Payne of Sidney has so far had an amazing career in swimming. And it’s been against all odds. The son of Jeff and Wendy Payne, Jarrett was diagnosed at a very young age with Ehlers-Danlos Syndrome. As explained in medical terms, Ehlers-Danlos Syndrome is a group of inherited disorders that […]
Posted on June 24, 2016
Brittany (and her support group) has entered a short film contest to raise awareness of Ehlers-Danlos Syndrome and Mental Health. They are now FINALISTS! To support the effort, please share, watch and re-watch this video through July 7! If they win, they will receive a $2,000 grant to make a longer film on EDS and […]
Posted on June 18, 2016
PRESENTATION TITLE: “Orthopedic Issues in the EDS Hand, Wrist and Arm” PRESENTER: Dr. William Ericson Sponsored by www.bodysupportstore.com The slides used in this presentation will be posted soon. Click to watch the recording of this presentation NOTE: There is a small black square on the presenter’s slides that we could not remove. INVITE YOUR FRIENDS: Spread […]
Posted on June 18, 2016
By Felice J. Freyer GLOBE STAFF . Jonathan Rodis takes his hydrocodone pills sparingly, only when the pain becomes unbearable. He doesn’t like the way the drug fogs his brain. And lately, he also needs to conserve — because new federal rules make it hard to get a refill. . . . Rodis has […]
Posted on June 11, 2016
By Michael D. Pitman Staff Writer Elizabeth Schulze worked for years to be able to garner the strength and stamina to walk across the stage and receive her high school diploma. While the act is easy for most high school seniors, it was not for Schulze. Amy Schulze said her daughter, who plans to attend […]
Posted on June 10, 2016
Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com TOPIC: “Mast Cell Activation Syndrome” PRESENTER: Dr. Lawrence Afrin Click IMAGE for the recording of this presentation. Click here for the link to the presentation slides INVITE YOUR FRIENDS: Spread the knowledge! Please post this announcement on Facebook, and forward this to others […]
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