Archive for the ‘Managing Ehlers-Danlos’ Category

blog-post-thumbnail
Listen to Radio Talk Show on “EDS Pain Management”

Posted on September 14, 2013

EDS Awareness was invited to participate in Radio talk show about EDS Pain Management. It aired on Monday night, 7/22/2013. (Click on the title above to listen to a replay of the interview.)  You will also learn about the EDS Awareness Support Group program. Click here  to listen to the radio show (after commercial). Enjoy the program. We appreciate your Likes […]

Read More

Watch this Video on Pain Management for Ehlers-Danlos Syndrome (EDS)

Posted on August 24, 2013

Watch this MUST-SEE video presentation from the Cincinnati Children’s Hospital discussing chronic pain management for Ehlers-Danlos Syndrome. This recent “online Q & A” event was held Tuesday, 8/20/13. Their primary focus is pediatrics, but the information will be helpful to all patients. Click here to start the video program About This Session Cincinnati Children’s Hospital Medical Center […]

Read More

blog-post-thumbnail
Remembering Jane – A Quilter With Ehlers Danlos Syndrome

Posted on August 22, 2013

Jane continued to give back to others, in spite of her struggles with type-4 (vascular) Ehlers-Danlos syndrome, an incurable, inherited connective tissue disorder. By  DOUG MOE | Wisconsin State Journal “There are going to be a number of quilts in this story, but remember the blue one with houses on it. Marykay Zimbrick bought it […]

Read More

blog-post-thumbnail
The Library Enables EDSers with Books on CD

Posted on July 20, 2013

At this UK library there was no judgment …. I was always welcome. “The Library Campaign has accused the government of hiding the exact impact of cuts that could cause the closure of a further 400 UK libraries by 2016. As a long-term supporter of the campaign to keep libraries open, I’ve signed petitions and shared articles promoting […]

Read More

blog-post-thumbnail
Service Dogs Can Improve Life with Ehlers-Danlos Syndrome

Posted on July 17, 2013

Service dogs can’t be turned away from public businesses, restaurants and parks.  Those with disabilities, including EDS, need their companions for assistance in public and at home.  By Elia Madrid-Onofre | “I walked into the grocery store with my roommate about three months ago. We were minding our own business, and before we could make it […]

Read More

blog-post-thumbnail
Every Day Begins the Same Way – With Medication

Posted on July 6, 2013

    By Justin Dacey | jdacey@mlive.com  Vacha’s treatments are experimental and very expensive.  She is working to make her life with Ehlers-Danlos Syndrome a little better.    JACKSON, MI — “Rocking slowly back-and-forth on her mother’s screened back porch in Summit Township, Elizabeth (Alden) Vacha forces a smile, disguising the pain and frustration she feels. […]

Read More

blog-post-thumbnail
Subluxating and Dislocating Joints

Posted on June 26, 2013

Posted by Springsong This is a difficult issue to deal with for those with Ehlers-Danlos Syndrome. “In the past I was very naïve over subluxation & dislocation of joints thinking that it would only happen in cases of extreme injury, boy was I wrong [sighs].  My first instance of dislocation occurred around my teens, I […]

Read More

blog-post-thumbnail
Ehlers-Danlos & the “Spoon Theory” get attention on BBC News

Posted on June 21, 2013

Many EDSers use the “Spoon Theory” to explain their fatigue and limitations due to the acute-chronic pain cycle.  BBC  News presents a series on “insights into disabled life” which shares the “Spoon Theory” with the public audience.  We hope this will increase awareness & understanding of  the compromises we EDSers must make to manage Ehlers-Danlos […]

Read More

Get Webinar Announcements And Our FREE Guide

Support EDS Awareness

See all upcoming events

Current Poll

How long until you received a proper diagnosis for EDS?

View Results

Loading ... Loading ...