Thank you so much for your post!
Your wife’s struggles mirror my own in so many ways.
My daughter was diagnosed with EDS almost a decade ago, but the doctor’s in the area considered it a ‘non-illness’, gave us zero information, & zero help.
As both our healths deteriorate, I’m back to looking for answers, solutions, or even just ideas & direction.
You’ve given me a cohesive way to explain the symptoms to the rhumatologist I go see next month.