Posts Tagged ‘Parenting Ehlers-Danlos’

Posted on January 9, 2013
What an incredible story of a 5 year old girl who got to come home from the hospital for Christmas. How difficult EDS can be to even the youngest of our community! Click picture for full article We welcome comments and Likes regarding this story
Posted on August 21, 2012
We wrote about Em before the EDNF Learning Conference in Cincinnati, Ohio. She is a very brave young lady. Her mother tells us how she is doing. “But, my kid is pretty amazing. Growing up is challenging under the best of circumstances – adding to that mix complicates things exponentially. Em has had a rough […]