Parenting Ehlers-Danlos

Collage featuring the documentary Complicated: the main film poster shows a silhouetted mother and child holding hands, alongside photos from screening events including a speaker presenting in a theater, attendees and families posing at screenings, and group photos from medical and advocacy conferences.

Why May is The Moment for “Complicated”

We didn’t plan it this way, but the release of our documentary film, Complicated, on Apple TV in May feels almost fated. Between Ehlers-Danlos Syndrome (EDS) Awareness Month and Mother’s Day, the timing reflects the very heart of this project that we started nine years ago. To see it come to fruition has been incredible, and I […]

Title of the image: Research Round-up. Three children dressed in Western attire sit astride horses in front of a setting sun.

Research Round-up, Edition Five: Pediatrics

Welcome back to Research Round-Up. This time, we’re looking at research that focuses on Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorder (HSD) in the young ‘uns, from birth to age 18. While some of the effects of EDS can be the same on adults as on the little ones, sometimes, the kiddos have more to […]