Posts Tagged ‘EDNF Conference’
Posted on November 29, 2021
Vascular Ehlers-Danlos condition is an inherited connective tissue problem that is brought about by deficiencies in a protein called collagen. It is viewed as the most extreme type of Ehlers-Danlos disorder (EDS). Common symptoms incorporate thin, transparent skin; bruising; specified facial appearance; and fragile arteries, muscles, and inside organs. Vascular EDS is generally caused by […]
Posted on July 12, 2014
Watch the video tour of the EDSawareness.com site in 2012: EDSawareness.com celebrated its 2nd year anniversary in July 2014 by sponsoring a booth at the EDNF Learning Conference in Houston TX. We have come a long way in just two short years! This video shows the launching of EDSawareness.com at the 2012 Cincinnati EDNF Learning Conference! We welcome Comments […]
Posted on May 11, 2013
Don’t miss the 2013 EDNF Conference in Providence, RI. EDSawareness.com will be a sponsor again this year. Stop by our booth to learn more about our free support group program! Here is a summary of the 2012 conference experience: Attendees witnessed several exciting announcements at the 2012 EDS learning conference! It was announced that the […]
Posted on August 22, 2012
www.EDSawareness.com launched its new online resource at the EDNF Learning Conference last week in Cincinnati, Ohio. “We had an overwhelming response”, says John Ferman, Founder. “My wife passed away in 2008 – never knowing EDS was the cause of 30 years of chronic pain. This was the same year my daughter was diagnosed with […]
Posted on August 21, 2012
We wrote about Em before the EDNF Learning Conference in Cincinnati, Ohio. She is a very brave young lady. Her mother tells us how she is doing. “But, my kid is pretty amazing. Growing up is challenging under the best of circumstances – adding to that mix complicates things exponentially. Em has had a rough […]
Posted on August 9, 2012
The EDNF announced that it will be forming an international research registry! We will be asked to donate blood and/or tissue samples to help in the effort. In addition, plans are underway to found an EDNF Clinical Care and Research Center! The location of the proposed center has not been determined; several institutions are being considered. […]
Posted on August 1, 2012
The EDNF Learning Conference in Cincinnati, Ohio will be a rewarding experience for all who can attend. Even if traveling is a challenge, it is definitely worth it. This EDS family anticipates going to the conference, and shares their perspective in a personal blog. “Been awhile since I posted, so I thought I would do a […]
Loading ...
