EDNF Conference

Ehlers-Danlos Syndrome (Vascular Eds): Things you should know!

Ehlers-Danlos Syndrome (Vascular Eds): Things you should know!

Vascular Ehlers-Danlos condition is an inherited connective tissue problem that is brought about by deficiencies in a protein called collagen. It is viewed as the most extreme type of Ehlers-Danlos disorder (EDS). Common symptoms incorporate thin, transparent skin; bruising; specified facial appearance; and fragile arteries, muscles, and inside organs. Vascular EDS is generally caused by […]

The Directory for EDS Support Groups

Watch the video tour of the EDSawareness.com site in 2012: EDSawareness.com celebrated its 2nd year anniversary in July 2014 by sponsoring a booth at the EDNF Learning Conference in Houston TX.   We have come a long way in just two short years!   This video shows the launching of  EDSawareness.com at the 2012 Cincinnati EDNF Learning Conference! We welcome Comments […]

EDS Support Group Directory in Development at www.EDSawareness.com

  www.EDSawareness.com launched its new online resource at the EDNF Learning Conference last week in Cincinnati, Ohio. “We had an overwhelming response”, says John Ferman, Founder. “My wife passed away in 2008 – never knowing EDS was the cause of 30 years of chronic pain.  This was the same year my daughter was diagnosed with […]