cervical spine

mri images of the brain

Measuring the Unmeasured

What Two New Studies Say About the Head, Neck, and hEDS People with Ehlers-Danlos syndrome have heard for years that their symptoms are “in their head.” In one sense, that may be true—but not in the way we all hate to hear. When it comes to symptoms like headaches, nausea, dizziness, brain fog, visual disturbances, […]

Research Round-up, Edition Six

Previous editions of Research Round-up can be found at the following links: Edition 5 (Pediatrics)   Edition 4 (Neurodivergence)   Edition 3   Edition 2   Edition 1 Howdy, partners! This Research Round-up has roped in a whole herd of topics for you. We hope you enjoy the read, learn a thing or two, and feel […]

A set of different surgical tools

Outcomes of Craniocervical Instability Fusion Surgery in People with EDS

A recent study by Henderson et al. found significant benefits for EDS patients with severe craniocervical instability who underwent occipito-cervical fusion surgery.  Craniocervical instability is one of the most severe neurological complications of the Ehlers-Danlos syndromes, causing many affected individuals symptoms such as headaches, severe full body pain, dizziness, nausea, blurred vision, paresthesia, fatigue, weakness, […]