Archive for the ‘Managing Symptoms’ Category
Posted on June 15, 2015
Watch this TV news video about Madison whose soccer team helps raise awareness for Ehlers-Danlos Syndrome and funds for Cincinnati Children’s Hospital. The SouthStars Soccer Club Team Lightning hosted a bowl-a-thon at Poelking Lanes South in honor of Madison.
Posted on June 6, 2015
Ehlers-Danlos Syndrome (EDS) was once thought to be a rare disorder, but EDS experts say its prevalence is under-estimated and its diagnosis is often missed! Learn the signs. By Abi Jackson _ If you suffer from these ailments, you could have EDS – a rare condition of the joints. Here’s what you need to know. If you don’t know […]
Posted on May 31, 2015
The May 30th Ehlers-Danlos / Chiari walk in Cincinnati, OH had an over whelming response! In addition to our group members, the walk attracted more than 75 new EDSers and families! Please join us in June for several walks throughout the country!
Posted on May 19, 2015
Watch this FREE video presentation! Dr. Brad Tinkle presents “Introduction to Ehlers-Danlos Syndrome”. Sponsored by www.bodysupportstore.com _ Click here for the recording of this presentation _ Click here for the slides used in this presentation _ To browse MORE VIDEO presentations by other EDS Experts – Click Here (then select “previous page” to view more recordings.) _ About our […]
Posted on May 13, 2015
Little Henry and his family are struggling with Classical Ehlers-Danlos Syndrome. It took a year to be diagnosed. Now that the cause of his symptoms has been identified, his parents can better care for him.
Posted on May 10, 2015
Vascular Ehlers-Danlos Syndrome is the most devastating type of EDS. It’s a disease so rare that only one out of every 250,000 people will be diagnosed with it. The DEFY Foundation was started by two students at West Chester University.
Posted on May 1, 2015
Brynn had a long history of adverse reactions to many foods she was eating, but finally determined it was not traditional food allergies! She has found ways to manage her Mast Cell Activation Syndrome – including EpiPens and a service dog. By Kira Peikoff The Symptoms Brynn Duncan was 11 years old when her stomach started to revolt against food. Frequently […]
Posted on April 22, 2015
Listen to Dr. Manu Sood’s webinar about Gastrointestinal Disorders in EDS. Dr. Sood has spoken at the EDNF Conference and been published on topics such as GI Motility Disorders, IBS and GERD.
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