Archive for the ‘Managing Symptoms’ Category

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Disconnnected… Ehlers-Danlos syndrome: Some symptoms point to a need for greater awareness among dental professionals

Posted on July 17, 2015

By Judith M. Stein, RDH. Ehlers-Danlos syndrome (EDS) was not only “under my knowledge radar,” it wasn’t even on my screen of awareness. What launched this syndrome into my awareness was a community tragedy where

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Trevor will be Riding 100 miles to Raise Cash for Hypermobility Association

Posted on July 1, 2015

Trevor Sleeman will be riding his bicycle to raise awareness and funds for the Hypermobility Association. [Halstead Gazette] Trevor will take part in a 100-mile bike ride to raise money for people with a painful medical condition after his wife was diagnosed with it. Trevor Sleeman (pictured), 49, will take part in the Prudential 100 bike […]

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Ehlers-Danlos Syndrome May Increase Susceptibility to Infections

Posted on June 25, 2015

People with Ehlers-Danlos Syndrome (EDSers) may have higher risk for infections. Fragile skin and poor healing may lead to skin infections.  EDSers often have a lowered immune system, possibly due to chronic stress on multiple body systems or an IgG-3 deficiency.  By JORAWSTRON People with EDS seem to get more infections than people without EDS, and these infections often […]

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Young Mom Diagnosed with “Rare” Genetic Disorder

Posted on June 22, 2015

Watch this TV news video about Enedina Stanger’s journey to Ehlers-Danlos diagnosis after the birth of her second child. (KUTV) Michael and Enedina Stanger’s love story started shortly after she graduated high school. The two eventually got married and they had 2 kids. After the birth of their second daughter, Enedina’s health started to deteriorate. […]

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Ehlers-Danlos – “An Accident Waiting To Happen”

Posted on June 18, 2015

Philip Howard was the 88th person in Britain to be diagnosed with Ehlers-Danlos syndrome (EDS). He has written a book about his fight to overcome adversity. Philip Howard’s new book “An Accident Waiting To Happen” tells of living with a rare condition that leaves him prone to falling over and breaking bones. Ben Blosse reports. […]

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Free Webinar: “Connective Tissue Disorder Research” by Dr. Hal Dietz – Recording Available

Posted on June 16, 2015

Watch this FREE educational video!   _ Dr. Hal Dietz presents “Connective Tissue Disorder Research”   Sponsored by www.bodysupportstore.com    TOPIC:  “Connective Tissue Disorder Research”   PRESENTER: Dr. Hal Dietz _ _   Click here for the recording of this presentation Click here for the slides used in this presentation  __ About our speaker: Dr. Hal Dietz – Dr. Dietz  is […]

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