Archive for the ‘Gastrointestinal’ Category

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Webinar on “Gastrointestinal Disorders in EDS” by Dr. Manu Sood – Recording Available

Posted on April 22, 2015

Listen to Dr. Manu Sood’s webinar about Gastrointestinal Disorders in EDS. Dr. Sood has spoken at the EDNF Conference and been published on topics such as GI Motility Disorders, IBS and GERD.

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True Love Survives with Life-saving Ehlers-Danlos Surgery

Posted on December 23, 2014

Kyli and Dustin are an engaged couple who both have Ehlers-Danlos Syndrome. Due to a major surgery, the revised date of their union is Oct. 10, 2015.  Here is their story of how love prevails despite health setbacks: By Jorena D. Faulkner SEAVILLE – “When 28-year-old Dustin Wood placed an online ad in the Jersey Shore’s Craigslist wanted section, […]

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Take Survey on Gastrointestinal Issues with EDS or CTDs—Expires on 12/31/2014

Posted on December 14, 2014

Your input is needed for this very important EDS survey! Follow the link at the bottom of this article to take the survey. This survey on gastrointestinal issues is being conducted by a group of doctors at Beth Israel Deaconess Medical Center / Harvard Medical School. The goal is to better understand the bowel and stomach issues that might […]

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Colon Hydrotherapy is Risky for Ehlers-Danlos Patients

Posted on November 3, 2014

Patients with Connective Tissue Disorders, such as Marfan or Ehlers-Danlos Syndrome, should be aware of the risks of colon hydrotherapy. There is a possible risk of a puncturing a hole in the bowel. Precautions should also be taken by anyone who having prior colon surgery or severe hemorrhoids. By Cari Nierenberg. “Cleaning out the colon is sometimes necessary— […]

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Dr. Collins Video: Ehlers-Danlos Syndrome’s Affect on Gastrointestinal Function

Posted on November 14, 2013

Dr. Heidi Collins, EDS expert and patient, talks about how Ehlers-Danlos affects digestion, nutrition, bowel function, and gut-related immune function. She indicates that gastrointestinal complications of EDS are common, potentially disabling, under-appreciated by clinicians, and well-documented in existing literature. Learn more from her very informative video presentation. Be sure to watch all 6 presentations by […]

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Dr. Francomano Video: Ehlers-Danlos’ Affect on Multiple Body Systems

Posted on November 13, 2013

Don’t miss these videos! Dr. Francomano, EDS expert, talks about Ehlers-Danlos as a multi-dimensional disorder that can profoundly affect quality-of-life.  She describes how EDS affects multiple body systems–musculoskeletal, neurological, dermatological, cardiovascular, gastrointestinal, and immunological. She discusses pain, fatigue, autonomic dysfunction, and much more. Chiari, Fibromuscular Dysplasia, CVID, and Mast Cell Activation Disorder are also mentioned. […]

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Attention Doctors: An EDS Patient’s Bill of Rights

Posted on June 6, 2013

Many EDS patients are struggling to get their doctors to understand their condition.  This “Bill of Rights” is a tool that may help EDSers communicate with doctors. By     an_angel_with_wings “The purpose of this Bill of Rights is not to be combative or argumentative. I have experienced all of these things during the time that my […]

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