Posted on February 15, 2018
The most beautiful pamphlets that I have ever seen!! Wow – very professionally done and informative! I will be very proud to distribute these I think having professionally looking materials helps people take us more seriously.
Posted on December 22, 2017
You do great work and are consistently there for all those who are working to keep the support groups going. I Refer everyone I hear from to you and the diverse programs that you offer.
Posted on October 19, 2017
What a great job you are doing. I suddenly realised that I no longer seem to be receiving emails for your webinars. Please could you reinstate me?
Posted on October 12, 2017
This is all so helpful, thank you so much! I just got diagnosed so it’s incredibly helpful to have all this support and information available.
Posted on September 22, 2017
Thank you a million times for all you do and the wonderful work and resources you provide. As an EDS patient I am so grateful. This organization is the best one for EDS patients.
Posted on September 21, 2017
Thank you so much for the effort, dedication and sacrifice that you and your daughter have made for so many people around the world including those living in the forgotten parts of the world like us.
Posted on July 20, 2017
Thank you so very much for providing me with all of these resources…I should have reached out for help such a long time ago. I look forward to looking at all of them and attending meetings in the future.
Posted on July 7, 2017
Thank you for sharing your wife’s story on EDS…. an amazing soul to live through so much pain and have everyone undermine her due to their ignorance … I could relate to her story… I was diagnosed with Fibromyalgia in 2008 and just found out it is actually EDS.