Posted on July 20, 2017
Thank you so very much for providing me with all of these resources…I should have reached out for help such a long time ago. I look forward to looking at all of them and attending meetings in the future.
Posted on July 7, 2017
Thank you for sharing your wife’s story on EDS…. an amazing soul to live through so much pain and have everyone undermine her due to their ignorance … I could relate to her story… I was diagnosed with Fibromyalgia in 2008 and just found out it is actually EDS.
Posted on July 4, 2017
First of all I would like to say thank you very much for your unwavering support of EDS Wisconsin. I am so thankful that the EDS community has you and I deeply appreciate the time and effort that you have put into awareness and education for EDS.
Posted on June 16, 2017
Thank you for dedicating your time to providing us all with these great video conferences on EDS & related conditions. Thank you for providing us with a web site that allows us to share our groups with the community.
Posted on June 14, 2017
I thank you very much for your efforts regarding making this information for EDS able to be seen worldwide. I am from Austria and I have no doctor who is able to help me. EDS is not known in Austria.
Posted on May 6, 2017
I want to let you know that I appreciate the webinars so very much. I have learned a lot from them and hope you continue to present them as more is learned about EDS and treatment.
Posted on March 31, 2017
Thank you John, your daughter Deanna and your darling wife who ultimately lost her life. You are the real heroes for sharing this information and getting it out there. We appreciate you and your daughter for being such fantastic advocates of this horrible illness.
Posted on March 30, 2017
We do like your webinars which are freely available on youtube after the live session ends. And that is so kind and generous of you. I do live here in Pakistan and I am a young physician with a mast cell activation disorder (not EDS) and I find tremendous help whenever I watch your wonderful […]