Posted on October 19, 2017
What a great job you are doing. I suddenly realised that I no longer seem to be receiving emails for your webinars. Please could you reinstate me?
Posted on October 12, 2017
This is all so helpful, thank you so much! I just got diagnosed so it’s incredibly helpful to have all this support and information available.
Posted on September 22, 2017
Thank you a million times for all you do and the wonderful work and resources you provide. As an EDS patient I am so grateful. This organization is the best one for EDS patients.
Posted on September 21, 2017
Thank you so much for the effort, dedication and sacrifice that you and your daughter have made for so many people around the world including those living in the forgotten parts of the world like us.
Posted on July 20, 2017
Thank you so very much for providing me with all of these resources…I should have reached out for help such a long time ago. I look forward to looking at all of them and attending meetings in the future.
Posted on July 7, 2017
Thank you for sharing your wife’s story on EDS…. an amazing soul to live through so much pain and have everyone undermine her due to their ignorance … I could relate to her story… I was diagnosed with Fibromyalgia in 2008 and just found out it is actually EDS.
Posted on July 4, 2017
First of all I would like to say thank you very much for your unwavering support of EDS Wisconsin. I am so thankful that the EDS community has you and I deeply appreciate the time and effort that you have put into awareness and education for EDS.
Posted on June 16, 2017
Thank you for dedicating your time to providing us all with these great video conferences on EDS & related conditions. Thank you for providing us with a web site that allows us to share our groups with the community.