John … still advocating away when others would give up. you are truly an amazing man that we all admire.
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How long until you received a proper diagnosis for EDS?
Run Like a Zebra Race
Brown Medical School Cerebrospinal Fluid Disorders Symposium
Dayton Zebras 5k
R.I. EDS Awareness Month Party
Tri State May EDS Awareness Activities
May EDS Awareness Activities in R.I.
RareKC Town Hall Event 2018
EDS Awareness at Dayton 2017 Holistic Symposium
Standing Up for POTS October 7 2018
Chiari 5k Walk with Dayton Zebras
2017 EDS Global Conference
EDS Awareness 5k Hosted by Dayton Zebras
Tri-State EDS Support Group Activities in WV
University of Pittsburgh Occupational Therapy Students
Ehlers-Danlos Zebras at the Dayton Holistic Health Symposium
Ehlers-Danlos Awareness Exhibit at the Arthritis Foundation Expo in Cleveland, OH
Dayton Zebras at “Conquer Ehlers-Danlos & Chiari Walk Across America 5K”
Univ. of Illinois Round Table Discussion about EDS
Supporters of Grace Ehrbar, a Cleveland member with VEDS who ran the Cleveland Marathon in May for EDS Awareness
Ehlers-Danlos Hoofbeat Run Walk-N-Roll included a 1 mile run/walk/roll, a 5K run/walk and a ½ marathon run on August 6, 2016 in King Ferry, NY. CLICK to learn more.
The Inland Northwest Ehlers Danlos Support Group painted coffee mugs during a meeting and had a blast!
Cara Burton and her family had an article published in the Southern Indiana Magazine “Explorer” – CLICK HERE for the article
The Cleveland Group’s EDS/Chiari Walk & Meet-up was a fun activity! Click here for list of more walks.
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