Presentation & Round Table Discussion with children with EDS

Thank you all for taking the time to come to UIC College of Medicine on 9/21/2016 to let us learn about EDS. We all really enjoyed the talk and learned how to diagnose this collagen disorder!

We met children with Ehlers-Danlos-Syndrome to hear their stories.
Members of the EDS Chicago Support and Awareness group presented the main diagnostic
features of this collagen disorder, including Beighton score, and answered questions.
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Current Poll

How long until you received a proper diagnosis for EDS?

  • >20 years (53%, 2,802 Votes)
  • 10-20 years (17%, 927 Votes)
  • 2-5 years (13%, 665 Votes)
  • 5-10 years (12%, 652 Votes)
  • 1 year (5%, 264 Votes)

Total Voters: 5,310

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