Ohio State University Women’s Ice Hockey Team held an Ehlers Danlos Syndrome Awareness Night

 

OSU TEAM_2Columbus EDS Support group 2015

OSU Team_3

 

 

 

 

 

 

“On February 13, The Ohio State University Women’s Ice Hockey Team held an Ehlers Danlos Syndrome Awareness Night to support their teammate Erin Selfe (10), her family and the EDS Community during Rare Disease Month.

Erin became a member of the Ohio State Team through Team IMPACT, a non-profit organization that matches children dealing with life threatening and chronic illnesses with college athletic teams.  Kayla Sullivan from the Ohio State Women’s Ice Hockey Team organized the event in cooperation with Coach Carson Duggan, Katie Chokreff from the Fan Experience and Promotions Office at OSU, and Erin’s Mom, Sherry Selfe from Answers for Erin.  Katy Selfe (13 – EDSer) sang the National Anthem at the start of the game.

Ohio State provided free “Buckeyes Care” T-shirts, Foam Hockey Sticks, and autographed posters for fans.  Answers for Erin provided free awareness bracelets and Ehlers Danlos Syndrome literature.  The Columbus EDS support group provided an awareness display and banners.  The event was advertised on Facebook groups, Twitter and Instagram and drew a large crowd including several EDS families from across the state of Ohio.  It is estimated there were at least 200 fans of all ages in attendance.

After the game, Erin and family introduced team members to individual EDSers and the children posed with players.  The Ohio State Women’s Ice Hockey Team is proud to support Erin and her family and assist them in raising awareness for Ehlers Danlos Syndrome.  Additional pictures from the event can be seen at https://www.facebook.com/Answers4Erin “

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