Archive for the ‘Nutrition’ Category

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Dr. Francomano Video: Ehlers-Danlos’ Affect on Multiple Body Systems

Posted on November 13, 2013

Don’t miss these videos! Dr. Francomano, EDS expert, talks about Ehlers-Danlos as a multi-dimensional disorder that can profoundly affect quality-of-life.  She describes how EDS affects multiple body systems–musculoskeletal, neurological, dermatological, cardiovascular, gastrointestinal, and immunological. She discusses pain, fatigue, autonomic dysfunction, and much more. Chiari, Fibromuscular Dysplasia, CVID, and Mast Cell Activation Disorder are also mentioned. […]

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Fatigue in Ehlers Danlos Syndrome

Posted on June 23, 2013

These parents of children with EDS are empowering them with the confidence and understanding to develop their own independence. “Does Ehlers Danlos Syndrome Make You Tired?” by Jenny; Cheetahs In My Shoes & Just Photos By Me | “I was going to call this post “Fatigue in Ehlers Danlos Syndrome” but that sounds a bit grown up […]

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Nutritional, Therapeutic Strategy for Ehlers–Danlos Syndrome

Posted on June 19, 2013

Nutrition is a very important part of treatment for Ehlers-Danlos Syndrome. This is an older but very interesting article.   Authored by: D. Mantle a, R.M. Wilkins b, V. Preedy c a Pharma Nord (UK), Telford Court, Morpeth, Northumberland NE61 2DB, UK b School of Biology, King George Vl Building, Newcastle University, Newcastle upon Tyne NE1 […]

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Girl with EDS Dies After Drinking Monster Energy Drink!

Posted on March 4, 2013

Monster says its drinks didn’t kill girl, 14. Could the high levels of caffeine in a Monster Energy Drink cause the death of a 14 year old girl with Ehlers-Danlos Syndrome? By JoNel Aleccia, Staff Writer, NBC News “The death of a 14-year-old girl who has become the poster child for banning caffeine-fueled energy drinks can’t be […]

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