Archive for the ‘Surgery’ Category

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Free Webinar – “Chiari Malformation in EDS” – Recording Available

Posted on March 1, 2016

Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com     TOPIC: “Chiari Malformation in EDS” PRESENTER: Dr. Holly Gilmer   Click IMAGE for a link to the recording Click here for a link to the presenter’s slides     INVITE YOUR FRIENDS: Spread the knowledge!  Please post this announcement on Facebook, and forward this invitation to others who […]

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Elisha Doesn’t Regret Decision to Amputate for Ehlers Danlos Pain Relief: Watch VIDEO STORY

Posted on December 30, 2014

Watch this video! Elisha Morgan is recovering from a controversial foot amputation — with no regrets. Whether you agree with her decision or not, there is no doubt of the bravery she’s displayed in this situation — we salute her strong spirit!

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Chronic Pain from Ehlers-Danlos Syndrome Leads to a Drastic Decision

Posted on December 26, 2014

Elisha Morgan’s 8-year struggle with severe foot pain lead to an Ehlers-Danlos diagnosis that changed her life. Her doctors exhausted all treatment options. Now, she considers making a very difficult decision … (Part 1 of 3)

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True Love Survives with Life-saving Ehlers-Danlos Surgery

Posted on December 23, 2014

Kyli and Dustin are an engaged couple who both have Ehlers-Danlos Syndrome. Due to a major surgery, the revised date of their union is Oct. 10, 2015.  Here is their story of how love prevails despite health setbacks: By Jorena D. Faulkner SEAVILLE – “When 28-year-old Dustin Wood placed an online ad in the Jersey Shore’s Craigslist wanted section, […]

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Surgery helps some Ehlers-Danlos patients; but multi-systemic effects remain

Posted on March 16, 2014

This is a remarkable story about Kelly Koep, a young lady with Ehlers-Danlos Syndrome, who is beating the odds. Her surgeon, Dr. Fraser Henderson, is still taken aback at the extent of the disabling conditions he sees in more than 500 EDS patients. EDS expert, Dr. Clair Francomano, says, “There’s a lack of knowledge in the medical community about […]

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