Posts Tagged ‘Managing EDS’
Posted on January 18, 2013
The Bellmawr resident writes edgy, melodic rock songs with titles like “Palinopsia,” the name for an optical disturbance that’s among the debilitating symptoms of Ehlers-Danlos Syndrome.About four years ago, Fatale was diagnosed with the connective-tissue disease, which creates havoc in the joints, spine, and elsewhere. After surgeries left her barely able to move her head, […]
Posted on January 12, 2013
Jordan is a brave young man. At nine years old he sees the need for giving to others, even while he is struggling himself with Ehlers-Danlos Syndrome. “Jordan Corvin, Saugerties boy brings joy to Columbia Memorial patients. Jordan suffers from Ehlers-Danlos Syndrome, a disorder affecting connective tissues that causes acid reflux and seizures. He goes […]
Posted on January 1, 2013
Lauren has not been diagnosed with EDS yet. But she has many of the symtoms. Trying to work with this disorder can be difficult. “- This Genetic condition means Lauren’s collagen is too weak to support her joints – She goes to work at McDonalds even when she is in pain – Doctors dislocated Lauren’s […]
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