Rebecca – From 2012 Conference

I want to thank you both. John, I remember you from the EDS Conference in Northern Kentucky.  You were starting up the EDS Awareness.com program then. Seemed very sad still from losing your wife, explained her story to my daughter and I.  Very sorry.  I still have the business card.

I hope things are better.  My only child has EDS, then got Lyme. Can’t figure out if EDS could be this bad. I keep trying to find time to view the seminars online.

I just appreciate both your efforts.  As I try to keep my daughter and I both wanting to live, trying to find help, I know there are good docs, just not here.

God bless you both from the EDS community.   Sincerely, Rebecca

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