Posts Tagged ‘EDS updates’

Em Made it to the Conference!

Posted on August 21, 2012

We wrote about Em before the EDNF Learning Conference in Cincinnati, Ohio. She is a very brave young lady. Her mother tells us how she is doing. “But, my kid is pretty amazing. Growing up is challenging under the best of circumstances – adding to that mix complicates things exponentially. Em has had a rough […]

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EM didn’t miss the EDNF Learning Conference!

Posted on August 1, 2012

The EDNF Learning Conference in Cincinnati, Ohio will be a rewarding experience for all who can attend. Even if traveling is a challenge, it is definitely worth it.  This EDS family anticipates going to the conference, and shares their perspective in a personal blog. “Been awhile since I posted, so I thought I would do a […]

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Athlete with Ehlers-Danlos Syndrome

Posted on July 4, 2012

This is an interview with a Paralympic Swimmer who has EDS.  EDSer Nancy Burpee is interviewed by Faye Rapoport. Many EDSers struggle to maintain an exercise program. Frequent acute injuries prevent us from exercising routinely.  Swimming is one of the best sports for EDS because the water’s bouyancy reduces the weight on our unstable joints. We can […]

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Teenager Excels Despite Ehlers-Danlos Syndrome

Posted on June 10, 2012

Many people diagnosed with Ehlers-Danlos Syndrome look healthy. Most appear to be athletic, and they are intelligent and motivated to accomplish much in their lives. Melissa Rose is just that type of person.  The reality is that this disability is challenging and can definitely slow you up. “Fatigued hands, sore joints, back pain, easily bruised […]

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