Archive for the ‘Pain of EDS’ Category

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Video – 5 Tips for Managing Persistent Pain

Posted on May 26, 2017

Learn ways to reduce persistent pain by listening to a physician talk about her personal journey through pain and recovery. Dr. Bluestein says “in my wildest dreams, I never imagined that I would return to the very same clinic I had trained in as a physician … 18 years later … as a patient!   […]

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New Federal Rules Make it Hard to Get an Opioid Refill for Pain Sufferers

Posted on June 18, 2016

By Felice J. Freyer GLOBE STAFF   . Jonathan Rodis takes his hydrocodone pills sparingly, only when the pain becomes unbearable. He doesn’t like the way the drug fogs his brain. And lately, he also needs to conserve — because new federal rules make it hard to get a refill. . . . Rodis has […]

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EDS Physical Therapy Book & Free Webinar: “Living Life to the Fullest with Ehlers-Danlos Syndrome”

Posted on April 29, 2016

Click here to learn about the PT book that is helping EDSers throughout the US! For every purchase made through the following link, $1.00 will be donated to EDS Awareness programs.

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Free Webinar: “Cognitive Behavioral Therapy as a Coping Skill for EDS”

Posted on April 28, 2016

Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com  TOPIC: “Cognitive Behavioral Therapy as a Coping Skill for EDS” PRESENTER: Sara Williams, Ph.D. — Pediatric Pain Psychologist and Clinical Director of the FIRST Program for Pain Rehabilitation Cincinnati Children’s Hospital       Click IMAGE for the recording of this presentation. Click here for the link to the […]

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Free Webinar – “Soft Tissue Surgery in Collagen Disease (for EDS Feet & Ankles)” – Recording Available

Posted on January 20, 2016

Watch the recording of this free webinar – – Sponsored by www.bodysupportstore.com  – Topic – “Soft Tissue Surgery in Collagen Disease (for EDS Feet & Ankles)” – Presenter – Dr. Patrick Agnew   Click IMAGE for a link to this recording Click here for a link to the presenter’s slides Click here for an earlier presentation by […]

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Current Poll

How long until you received a proper diagnosis for EDS?

  • >20 years (53%, 2,803 Votes)
  • 10-20 years (17%, 927 Votes)
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