Archive for the ‘Genetics’ Category

Free Webinar: “Introduction to Ehlers-Danlos Syndrome” by Dr. Brad Tinkle – Recording Available

Posted on May 19, 2015

Watch this FREE video presentation! Dr. Brad Tinkle presents “Introduction to Ehlers-Danlos Syndrome”.   Sponsored by     _  Click here for the recording of this presentation _  Click here for the slides used in this presentation _ To browse MORE VIDEO presentations by other EDS Experts – Click Here  (then select “previous page” to view more recordings.) _ About our […]

Read More

“Doctor Speaker Series”: Cardiac manifestations in EDS – RECORDING AVAILABLE

Posted on May 8, 2014

  On May 7th, Dr. Staci Kallish spoke about cardiac manifestations in EDS. EDS Awareness’ Doctor Speaker Series is a webinar program hosted by and sponsored by  Upcoming FREE sessions will be offered the 1st and 3rd Wednesdays of each month.  Hope you can join us!  CLICK HERE for the recording More about Dr. Staci Kallish Click […]

Read More

Next-Generation Sequencing (NGS), Faster and More Economical for EDS & Marfans

Posted on April 21, 2014

      Better,  faster and more economical methods are emerging to analyze the genetic factors affecting our health. “Genetic factors play some part in nearly all health conditions and characteristics. However, there are some conditions in which these factors are almost fully responsible for causing the condition. These are called genetic disorders, or inherited […]

Read More

EDS Doctor Speaker Series – Dr. Wilson – RECORDING AVAILABLE

Posted on April 14, 2014

EDS Awareness invites you to watch this FREE webinar recording!   On April 9th, Dr. Golder Wilson spoke about Ehlers-Danlos Spectrum and Dysautonomia.  Click here for Audio Only Recording link Click here for Dr. Wilson’s slides   PRESENTER:   Dr. Golder N. Wilson is a pediatric geneticist   Topic:  Ehlers-Danlos Spectrum and Dysautonomia   INVITE YOUR FRIENDS: Spread the knowledge!  […]

Read More

What’s your opinion? 23andMe Genetic Testing Debate-RECORDING NOW AVAILABLE

Posted on December 9, 2013

Listen to a debate about ethical and legal issues of direct-to-consumer genetic testing. Link is provided below. The debate was spurred on November 22, when the FDA ordered the 23andMe company to stop marketing its product–  $99 genetic test offered direct-to-consumers. The FDA warning letter indicated that the company hadn’t secured marketing authorization and expressed concern that inaccurate results could […]

Read More

EDS Awareness Speaker Series – The Evolution of Genetic Diagnosis – Recording Available

Posted on November 27, 2013

EDS Awareness invites you to watch this FREE webinar recording! Our presenter for November 20th was  Stephanie Gandomi, MS, CGC, LGC She is a Licensed Genetic Counselor Her topic was: “The Evolution of Genetic Diagnosis and Why This Matters In Patient Care!” The recording of this presentation is now available at the following link:  Click here to […]

Read More

Dr. Collins Video: Ehlers-Danlos Syndrome’s Affect on Gastrointestinal Function

Posted on November 14, 2013

Dr. Heidi Collins, EDS expert and patient, talks about how Ehlers-Danlos affects digestion, nutrition, bowel function, and gut-related immune function. She indicates that gastrointestinal complications of EDS are common, potentially disabling, under-appreciated by clinicians, and well-documented in existing literature. Learn more from her very informative video presentation. Be sure to watch all 6 presentations by […]

Read More

Get Webinar Announcements And Our FREE Guide

Support EDS Awareness

See all upcoming events

Current Poll

How long until you received a proper diagnosis for EDS?

  • >20 years (53%, 2,803 Votes)
  • 10-20 years (17%, 927 Votes)
  • 2-5 years (13%, 665 Votes)
  • 5-10 years (12%, 653 Votes)
  • 1 year (5%, 264 Votes)

Total Voters: 5,312

Loading ... Loading ...