OR EDS Support Group Meetings
Please come scent-free to all meetings thank you!
We meet on the 4th Saturday of each month.
Support Group Meetings and Educational Meetings with presentations by EDS Friendly Doctors every other month!
We may occasionally organize some additional support-type gatherings throughout the year, based on interest and energy.
These will be announced here, through our OR EDS Zebra Newsletter and on our Facebook Groups
See below for links to like, join and share
Public Oregon EDS FB Page, OPEN OREGON Area EDS Support Group, CLOSED OREGON Area EDS Support Group
To Join the closed support group please email info@oreds.org with your name, diagnosis, if you are suspecting or are family, and any thing else that we can help you with. We do monitor who is asking to join do to the sensitive nature and details that are brought up in discussion to keep everyone privacy safe. If you wish to connect in person with a fellow member or EDS patient sooner our group is a great way to meet fellow zebras. We hope to see you at the next meeting!
Tentative Meetings Schedule for 2014
Location: Goodell PT, 4475 SW Scholls Ferry Rd Ste 258, Portland, OR 97225
Fall 2014:
Oct 25th 3pm-5pm Fall Educational Meeting – Heather Goodell M.S, P.T. will give an update on the Houston 2014 EDNF conference she attended in July and an overview of EDS appropriate Physical Therapy.
Nov 22nd 3-5pm – Support Group Meeting
Winter 2014-2015:
Jan 3rd 3-5pm – Support Group Meeting
Jan 24th – Educational Meeting- Speaker TBA
Feb 28th – Support Group Meeting
Spring 2015:
March 28th – Educational Meeting- Speaker TBA
April 25th – Support Group Meeting
May is Ehlers-Danlos Awarness Month! May 16th 2PM Walk, Roll, Sit & Eat– Spread Awareness like a Zebra- Join us in spreading awareness about EDS by handing out pamphlets in our Annual Walk & Roll on the Portland Waterfront. Bring your wheelchairs, walkers, canes and more whatever you need to stay hydrated and stable for a 3/4 mile walk to spread awareness about our condition. Wear your Zebra Stripes Proudly. We will meet at the Waterfront park and have a picnic and social gathering afterwards. All friends and Family Welcome the more the merrier!
May 30th – Educational Meeting- Speaker TBA
Summer 2015:
June 27th – Support Group Meeting
July 25 – Picnic in the Park – Location TBD
Aug 22nd – Educational Meeting- Speaker TBA
Fall 2015:
Sept 26th – Support Group Meeting
Oct 24th – Educational Meeting- Speaker Heather Goodell PT
Nov 21st – Support Group Meeting
Winter 2016:
Jan 2nd – Educational Meeting- Speaker TBA
Jan 30th – Support Group Meeting
Southern Oregon is also hatching a satellite group for those below Eugene on South. Meetings are starting to pop up all over the place. If you are in the southern area please come join us over on their growing FB group as well Southern Oregon EDS Group
