OR EDS May Awareness Month Activities

May is Ehlers-Danlos Awareness Month! Join us in these fun activities to help us become more visible:


May 16th EDS awareness Month Walk And Roll – we’re reprising last year’s event on the Portland Waterfront

Details to come, but like last year, we’ll meet at the Salmon Street Fountain in the afteroon in the south waterfront (by Hawthorne Bridge), and walk and roll north to the Saturday Market at the Burnside Bridge (about 3/4 mile) showing our zebra stripes and colors and handing out brochures to raise awareness. We realize this is a schlep, but that’s part of the point: learning what it takes for us TO get anywhere! Please email info@oreds.org if you will need a wheelchair or ride to the starting location, so arrangements can be made. Bring family and friends to help schlep you! We had a lot of fun last year despite the rain, and enlightened many on the way.

We hope some of our outlying zebras will also organize some similar awareness raising activities as able – anyone for walking in front of the State Capitol in Salem for instance? All ideas welcome – email us yours at info@oreds.org.

Get Webinar Announcements And Our FREE Guide