Cuyahoga Falls EDS Support Group Meetings

The Cuyahoga Falls EDS Support Group will begin meeting the 4th Monday of every month starting January 23, 2017 from 6-9. The building is handicap accessible and has a ramp to the Heritage Room, which we will be using.

Location: Pilgrim United Church of Christ (Heritage Room) 130 Broad Blvd. Cuyahoga Falls, Ohio 44221

Time: 6-9 pm (Please, come for some, stay for all… do not feel obligated to be there for the entire meeting)

Format: If we have a speaker, it will be at the beginning of the meeting, Q&A will follow, informal circle support discussion, and finally social time to make new friends. We will also be covering co-morbid conditions that affect EDS, like Dysautonomia/POTS, Chiari, Gastroparesis, Mast Cell Activation Disorder, etc. and different treatment modalities that interest our group.

What to bring/wear: PLEASE BE COMFORTABLE!!! Bring cushions, bring a pillow, if you need a blanket, bring it! If you want to wear your PJs, do it! This is a judgement free zone. I suggest a notebook or your phone to take notes, something to drink and if you bring a snack, no peanuts, please. Please be considerate with your fragrances, as we have many people who are exceptionally sensitive and may go into anaphylaxis.

I look forward to seeing everyone!!

If you are interested in Joining click the “Join” tab and provide your contact information and we will get back to you.