About Virginia EDS/Chiari/Syringo/TC/IIH/POTS Support group
Welcome to our Virginia EDS/Chiari/Syringo/TC/IIH/POTS Support Group
Virginia EDS/Chiari/Syringo/TC/IIH/POTS Support Group.
We are a VA face to face monthly meet and greet, as well as on-line support and resource group.
We are growing and now have Six locations as opportunity to meet up with and form friendships during difficult times that tend to isolate us. The goal is to never be alone, to have friendships that develop as life long family.
When that occurs that is a successful goal of the group, that has been met.
In addition the education and awareness of our illness’s is imperative and is available in our files and members life experiences. We offer physician lists and medical professionals that assist us in forming our individual medical team.
The on-line Support is strong, and far reaching.
This is a support group for you, and is “your” support group.
The six locations for meet and greets:
Fredericksburg
West End Richmond
Chester/Hopewell
Chesapeake
Roanoke
Lexington coming in 2016
You can reach us in face book as we are a closed group, with responses to requests daily. You can contact me or respond here on inspire.
Hyperinchrist@comcast.net
Screening Is performed, for safety of group.
We look forward to meeting you 💞
Thank you,
Elizabeth Rhoads
www.facebook.com/groups/195011847266960/
