About RI EDS-Kids Support Group
Our RI EDS-Kids Support Group was originally formed August 2015. We have regular meetings and social get-togethers. We understand EDSers have good days and bad days. Even if you cannot attend the meetings regularly, you can still communicate through our web pages. Please come join us, share your stories, and make lasting friendships. We provide education, support, and advocacy. We look forward to working on special projects and showing the community how that EDS doesn’t define who we are. EDS isn’t all that rare, just rarely diagnosed.
