Kansas City EDS Support Group Meetings
Hi Everyone,
I have been asked to lead the local Ehlers-Danlos Syndrome Support Group of Greater Kansas City. The meeting details are below. I understand that due to medical issues sometimes people will not be able to attend. I am planning to have some type of remote access to the meetings.
My hope for the Support Group is that we will become a community that provides education, resources, fellowship, and most important a place where you feel understood and accepted. I ask that whatever personal information that is shared within a meeting not be discussed outside of the meeting.
I believe in the servant leadership model. I want to know what your needs are so that we can work together to address them, if possible. I am asking everyone to think about what his/her gifts are and to be willing to utilize the gifts for the good of the group. Always remember that the little things are big things (i.e., a smile, words of encouragement).
Please, be aware that I do not have EDS. My daughter, Sydney has EDS-HT.
I look forward to meeting each of you.
Please click the JOIN button to let us know you are coming.
Take care,
Linda (Sydney’s Mom)
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Location:
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Church of the Resurrection (COR.org)
13720 Roe Avenue
Leawood, KS 66224
Building C: Room C133
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Date:
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First Sunday of the month (starting February 5, 2017)
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Time:
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1 pm to 3 pm
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*Feel free to Bring Whatever You Need to Feel Comfortable (i.e., pillows)
Building C is the Brown building, located at the corner of 137th and Roe. Park on the Roe side of the building and come in the double doors on the Roe side. Take first hall on the right. Room C133 will be the 2nd room on the left, right across from the water fountain and restrooms. Room C133 is the closest to the door, has easy accessibility for those in wheelchairs, and has Wi-Fi availability, on the east (Roe) side of Building C.
Note: The Church of the Resurrection (COR) is my church home. COR (including Pastor Adam Hamilton) has been and continue to be very supportive Sydney and me. The fee for the room has been waived for us.
