About the EDSers United’s NJ Community Support Group

Are you an EDSer looking for a positive group of people looking to make a difference? You found us!

The NJ Community Support Program hosted by the EDSers United Foundation is focused on providing the community with monthly professionally facilitated support group meetings, presentations by professionals that are experts in their fields of interest, and therapy classes that teach various methods of coping mechanisms. Please make sure to visit our website on a monthly basis for up-to-date information as to what the topics of discussion/presentation are, or if a therapy class will be taking place instead.

We encourage professionals to contact us if they are interested in presenting to the group, or if they are interested in discussing the launch of a potential coping mechanism therapy class.

We also ask that if you plan on attending any of our meetings to RSVP so that we can properly prepare the room, any snacks, and have enough handouts for everyone, if applicable.

Anyone with a rare genetic condition or a loved one of a rare disease patient is welcome to attend our Community Support Group Meetings. Our coping mechanism therapy classes, like our Paint to Donate parties, are open to the general public.

As Always Stay Strong & Stay Connected!

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