• Follow Us:

  • Join Our Team
  • Donate Now
logo
  • Home
  • About Us
  • What is EDS?
  • Team
  • Resources
    • For Patient
      • Brochure
        • EDS Back to School Special – Prep for K-12, College & Accommodations
        • Cervical Spine Instability: Patient Guide
        • Clinician-Associated Trauma Series
        • Decoding Medical Deductions: A Chronic Illness Patient’s Guide to Navigating Healthcare-Related Expenses and Taxes
        • Dysautonomia Patient Guide
        • Mastering Appointments Successfully with EDS
        • MCAS Patient Guide
        • Preventive Care Recommendations for Patients with the Ehlers-Danlos Syndromes
        • Tethered Cord in EDS: A Patient Guide to Symptoms, Diagnostics, Treatments, and Risks
        • Win Your EDS Disability Claim: A Zebra’s Step-By-Step Basic Training Bootcamp
      • EDS Support Group Leaders Resources
        • Guidelines for Starting a New Support group
        • FAQ  (Frequently Asked Questions) —  EDS Support Group Web masters
        • Healthcare Provider’s List
        • EDS Teacher’s Guide
        • What I should bring to my doctor
        • Membership Application Form
        • Comparative Pain Scale
      • Research Round-Up
  • Webinars
  • Newsletter
  • Articles
  • Podcast
  • Films
    • EDSed
    • Lego Oma
    • Much More Than That
    • Proud Stutter
    • We Are Visible
    • We Are Visible Too
  • Contact Us

Pain Management

“EDS and Pain: Connecting the Dots”, with Pradeep Chopra, MD

Click here for Part One

Click here for Part Two

 

“Centralized Intractable Pain in Ehlers-Danlos”, with Dr. Forest Tennant

“Musculoskeletal Headaches in EDS”, with Dr. John Mitakides

” Temporomandibular Joint (TMJ) and Cervico-cranial Instability (CCI) in the EDS Patient”, with Dr. John Mitakides

“A Unique Pain Management Treatment for EDS Patients: A Manual Physical Approach”, with Dr. Michael P. Healy, DPT

“Pain Management for Children with Ehlers-Danlos Syndrome”, with Ken Goldschneider, MD and Derek Neilson, MD

“Headaches and Ehlers-Danlos Syndrome”, with Dr. Diana Lebron

“Breaking the Cycle of Chronic Pain, Poor Sleep, Depression, and Fatigue”, with Dr. Alan Pocinki

“It is Not All in Our Head: Medical Psychiatry in Pain Management”, with Professor Joel Lamoure, RPh, DD, FASCP

“Chronic Pain Alternatives”, with Dr. Clive Bridgham

“Living Life Again with Dignity Using Medical Marijuana”, with Ellen Lenox Smith

“Cognitive Behavioral Therapy as a Coping Skill for EDS”, with Sara Williams, PhD

“All in Your Head”: The Problem of Psychogenic Diagnosis for Ehlers-Danlos Patients, with Diane O’Leary, PhD

 

Support us through our Amazon store for EDS-related products

Upcoming

Webinars Schedule

Susannah Fox

Live Webinar with Susannah Fox, Author of Rebel Health

Karina Strum

New Feature-Length Ehlers-Danlos Documentary ’We Are Visible’

See full schedule

Webinars

Current Poll

How long until you received a proper diagnosis for EDS?

View Results

Loading ... Loading ...
eds-logo

EDS Awareness is the primary initiative of Chronic Pain Partners, a patient-led nonprofit and a trusted voice in the Ehlers-Danlos community since 2011. Our mission is not only to raise awareness of Ehlers-Danlos Syndromes, but to support patients in navigating life after diagnosis.

Through our articles, newsletters, multimedia, and community storytelling, we help patients, medical professionals, and the broader community better understand EDS and its wide variety of comorbid conditions. By translating emerging research and connecting patients with experts, we turn complex medical information into clear, actionable knowledge that patients can use. We also offer practical guidance for everyday life with EDS, from addressing medical trauma to identifying the best supportive tools.

At EDS Awareness, our goal is to ensure every patient has the support and resources they deserve to live a full and active life with EDS.

Chronic Pain Partners, a US-based non-profit 501(c)(3) organization.

Support EDS Awareness

Donate Now

Quick links

  • Home
  • Team
  • Contact
  • About EDS
  • Policy

Social Links

Support EDS Awareness

Donate Now
© 2026 EDS Awareness. All rights reserved | Privacy Policy