EDS and CTD and related groups in New England

In our continuing efforts to provide support to/for all, we have some new groups (3 in total) to announce and welcome to our ever expanding CTD Family. I will list them/post them separately so people can join and share even if they live outside of New England.

Huge thanks to Abby S. for setting up these 3 new groups and her ongoing wonderful and caring support in everything we all do together! –Jon R.  

This is what was posted (the above) in all our EDS and CTD and related groups in New England and beyond: -Please feel free to share the links with friends and other groups but make sure you ask the Admins if it is okay first. Tell them that these groups are not replacing any existing Facebook groups, they are an entity to themselves and are connected to the EDS and CTD NE/MA Support group and their related CTD groups.. (due to the expanse of conditions, etc) Most of the Admins probably know me so they are all welcome to contact me by pm’ing me or emailing mel Thanks! -Jon R.
Parents of Kids with Marfans, EDS, and Related CTDshttps://www.facebook.com/groups/677125592731344/
Teens With Marfans, EDS, and Related CTDshttps://www.facebook.com/groups/2352369388384678/
Adults in their 20s/30s with Marfans, EDS, and Related CTDshttps://www.facebook.com/groups/608192503003409/
UPDATE:   I have received several messages, emails, etc about this group and asking about EDS and Marfan and are there similarities in symptoms. The answer is absolutely ‘Yes’. They share the brain fog, fatigue, throat issues, overall body pain, dura issues-CSF leaks, dental issues-TMJ, deviated septums, sleep apnea, headaches and migraines and on and on. Parents can definitely help onother if they have these conditions or related conditions. Please feel free to join.-Jon R.

Also, for all EDSrs over 40, Pilar G. D. Admins a wonderful Facebook group and you can find them at: Ehlers Danlos Support After 40https://www.facebook.com/groups/1118229584932359/