About New England EDS Support Group

Our group is comprised of individuals and families with young children, teens, young adults and parents who are affected by Ehlers-Danlos or a related connective tissue disorder, (either personally or as a parent of an affected child).  We are committed  to supporting one another in every facet of our work, whether it be through our quarterly support meetings/presentations, interim awareness meetings/sessions, ongoing awareness initiatives, (such as our “EDS Physician Awareness Committee”),  or through a variety of online communications, over-the-phone discussions, or simply by texting one another. Feel free to contact Jon by selecting the “Join” or “Contact” selection at the right.

 

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