About New England EDS Support Group
Our group is comprised of individuals and families with young children, teens, young adults and parents who are affected by Ehlers-Danlos or a related connective tissue disorder, (either personally or as a parent of an affected child). We are committed to supporting one another in every facet of our work, whether it be through our quarterly support meetings/presentations, interim awareness meetings/sessions, ongoing awareness initiatives, (such as our “EDS Physician Awareness Committee”), or through a variety of online communications, over-the-phone discussions, or simply by texting one another. Feel free to contact Jon by selecting the “Join” or “Contact” selection at the right.