Nebraska EDS Support Group Resources and Presentations

In this section, EDSers share topics, such as: local awareness activities, personal experiences and how EDS affects their daily living. If you would like to share your experiences, please contact us with your story:

Here are EDS Resource Guides and Presentations

Vascular Resource Guide

Clinical Reference Guide

EDS Parent Guide for Educators

EDS and Pain Management

Coordination of Care in Adults with EDS-HT

Psychiatric Misdiagnosis in Pediatrics

GI Disorders in Children with Hypermobility

Genetic and Inheritance of EDS

Connection the Dots between EDS and Related Conditions

EDS and Headaches

EDS 2014 Update

Too Tired EDS and Fatigue

Artful Advocacy for Patients: Skills for You, Your Family, and Your Community

Pain management in Ehlers Danlos Syndrome – 2015

What Is EDS? And What Isn’t?

 

 

 

 

 

 

If you have a specific request for an article or publication regarding any aspect of EDS, please use the contact form below.

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