Greater Philadelphia EDS Support Group Articles
Below are the handouts from our first few meetings:
– How to Prepare for Appointments as a Medical Zebra
– PowerPoint Presentation on Raising Awareness
Here are a few articles that we highly recommend to anyone with EDS, especially the newly diagnosed:
– HEDS: An Underdiagnosed Connective Tissue Disorder
– EDS: An Updated Critique
– Pain in EDS is Common, Severe, and Associated with Functional Impairment
– Management of Pain and Fatigue in EDS
If you would like to share your experiences, please contact us with your story: