Greater Philadelphia EDS Support Group Articles

Below are the handouts from our first few meetings:
–  How to Prepare for Appointments as a Medical Zebra
–  PowerPoint Presentation on Raising Awareness

Here are a few articles that we highly recommend to anyone with EDS, especially the newly diagnosed:
–  HEDS: An Underdiagnosed Connective Tissue Disorder
–  EDS: An Updated Critique
–  Pain in EDS is Common, Severe, and Associated with Functional Impairment
–  Management of Pain and Fatigue in EDS

If you would like to share your experiences, please contact us with your story:

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