About the Greater Philadelphia EDS Support Group

Welcome Zebras!

After much discussion that Philadelphia really needs a support group, the Greater Philadelphia EDS Support Group was formed in November of 2013. Our very first meeting consisted of four zebras and a spouse. In a few hours, we set the framework for what we wanted out of this support group. Our purpose is to educate, connect, and support other EDSers, as well as raise awareness. We invite EDSers, and their families, friends, doctors and other specialists to become active and help spread awareness in our community and beyond.

Since that very first meeting, our group has grown exponentially! We have meetings every three months, and fun social events between meetings. Currently, we have approximately 600 members in our Facebook group. We understand that EDSers have our good days and our bad days. Even if you cannot attend the meetings regularly, we can still communicate through our web pages.

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