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Search results for webinars

Webinar: “Ehlers-Danlos Hypermobility Type in the UK: Missed or Just Misunderstood?″, presented by Sarkar, Ajoy, MD
Webinar date: 7-Mar-17


Webinar: “Tenascin X and Ehlers-Danlos Syndrome”, presented by Bohn, Markus-Frederik, PhD
Webinar date: 20-Dec-16


Webinar: “Multidisciplinary Diagnostic and Management Approach to the Ehlers-Danlos Patient”, presented by Castori, Marco, MD
Webinar date: 11/22/2016


Webinar: “How, Why and When: Genetic Testing in EDS for the Non-Geneticist”, presented by Murray, Mitzi, MD
Webinar date: 10/22/2015


Webinar: “Update on Complications and Rare Forms of EDS”, presented by Stoler, Joan, MD
Webinar date: 9/15/2015


Webinar: “Connective Tissue Disorder Research”, presented by Dietz, Hal, MD
Webinar date: 6/16/2015


Webinar: “Introduction to Ehlers-Danlos Syndrome”, presented by Tinkle, Brad, MD
Webinar date: 5/19/2015


Free Webinar: “Vascular Ehlers-Danlos Syndrome / EDS type IV”, presented by Byers, Peter, MD
Webinar date: 12/17/2014


Webinar: “EDS – Hypermobility Type”, presented by Neilson, Derek, MD
Webinar date: 6/8/2014


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Upcoming

Webinars Schedule

Susannah Fox

Live Webinar with Susannah Fox, Author of Rebel Health

Karina Strum

New Feature-Length Ehlers-Danlos Documentary ’We Are Visible’

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EDS Awareness is the primary initiative of Chronic Pain Partners, a patient-led nonprofit and a trusted voice in the Ehlers-Danlos community since 2011. Our mission is not only to raise awareness of Ehlers-Danlos Syndromes, but to support patients in navigating life after diagnosis.

Through our articles, newsletters, multimedia, and community storytelling, we help patients, medical professionals, and the broader community better understand EDS and its wide variety of comorbid conditions. By translating emerging research and connecting patients with experts, we turn complex medical information into clear, actionable knowledge that patients can use. We also offer practical guidance for everyday life with EDS, from addressing medical trauma to identifying the best supportive tools.

At EDS Awareness, our goal is to ensure every patient has the support and resources they deserve to live a full and active life with EDS.

Chronic Pain Partners, a US-based non-profit 501(c)(3) organization.

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