Our goal is to Connect, Support, and Educate patients, caregivers and professionals on EDS through our webinars, continuing education courses and other activities.
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We started our programs in 2012 and now have over 120 support Groups and over 12,000 members on our email list
You might be interested a recent recording by Dr Francomano
She is located in Indianapolis.
In 2016 we conducted a world wide survey related to EDS.
You can also search from our over 100 webinar recordings by presenter, location or specialty.
You can get email announcements for future live webinars by requesting the “free Guide”on our site.
Here is a link to an “EDS Teacher’s guide”
In 2020 we launched a Nurses EDS Educational program
For those interested in starting a group, we direct them to our recent 2019 program at leadeds.com, This was conducted in Mason, Ohio but broadcast live.
Also click here to checkout the New EDS Documentary video we just published ‘We Are Visible”
We want to help those struggling with EDS to find the resources they need.
Kind Regards,
John & the EDS Awareness Team
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