Our Staff

We are pleased to have a staff of dedicated individuals sharing our passion to provide assistance and education to our EDS Awareness member community:

John-Ferman

President – Co-Founder

Richard Riemenschneider

Senior Consultant – Arizona Support Group Leader

(We are very sorry to announce our board member Richard Riemenschneider passed in late 2023.)

Linda Bluestein

MD. Volunteer Medical Consultant.

Founder and Host of the Bendy Bodies with the Hypermobility MD Podcast.

Andrea Julian

Secretary – Dayton & Support Group Leader

Dr. Mitakides

leading expert in the field of treatment of TMJ and craniofacial pain.

(We are very sorry to announce our board member Dr. Mitakides passed in late 2023.)

Jonathan Rodis

Founder and Co-leader-Ehlers-Danlos New England Support Group

Deanna Hamm

Co-Founder – Past Cleveland Support Group Leader

Martha Riemenschneider

Nursing Consultant

Media Team

Since May 2021, our dedicated media team brings the latest EDS news to you via our Chronic Pain Partners Post, a monthly newsletter featuring original content by and for the EDS community. 

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Jacqueline Teti

Writer

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Marcia Brock

Podcast Co-Host

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Cassandra Campbell

Podcast Co-Host

Karina Sturm

Editor-in-Chief

Kate Schultz

Assistant Editor-in-Chief

Regular Guest Authors & Past Volunteer Writers

Susan Jackson

Volunteer Writer

Crystal Sullivan

Volunteer Writer

Jackie Saa

Volunteer Writer

Beth Miller

Volunteer Writer

Sarah Cook

Volunteer Writer

Christie Cox

Volunteer Writer