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Ehlers-Danlos National Foundation

 

EDS Awareness has been a sponsor at the annual EDNF/EDS Learning Conferences since 2012. You will see our logo on the EDNF/EDS Sponsor page.

At the conferences we discuss forming local EDS support groups and provide information about our 2X monthly live EDS Educational Webinars and EDS Awareness activities in local communities.

Check out the links above.

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EDS Awareness is the primary initiative of Chronic Pain Partners, a patient-led nonprofit and a trusted voice in the Ehlers-Danlos community since 2011. Our mission is not only to raise awareness of Ehlers-Danlos Syndromes, but to support patients in navigating life after diagnosis.

Through our articles, newsletters, multimedia, and community storytelling, we help patients, medical professionals, and the broader community better understand EDS and its wide variety of comorbid conditions. By translating emerging research and connecting patients with experts, we turn complex medical information into clear, actionable knowledge that patients can use. We also offer practical guidance for everyday life with EDS, from addressing medical trauma to identifying the best supportive tools.

At EDS Awareness, our goal is to ensure every patient has the support and resources they deserve to live a full and active life with EDS.

Chronic Pain Partners, a US-based non-profit 501(c)(3) organization.

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