Share Your Story is an “umbrella site” for existing Internet resources about Ehlers-Danlos Syndrome. It is “by EDSers, for EDSers” because it’s driven by user participation and learning – for the benefit of the entire EDS community. The greater the participation – the greater the value to EDSers and those who care for them.

Ways you can contribute:
Submit an original article telling your story or share your insights about an online article that you’ve read.
Ask your family, friends, caregivers and medical providers to contribute their experiences and advice about helping EDSers.

Still not sure? Just drop us a line
We’ll help you with ideas and show you how to submit a posting. It’s EASY!