New England EDS Newsletters
The following are links to the New England EDS Support Group Newsletters:
Click here for the Volume 1 Issue 1 Newsletter
Click here for the Issue 2 Volume 1 Newsletter
Upcoming and Previous Webinar Speakers
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Ross A. Hauser, MD
10 Low-cost ways to improve symptoms of peripheral joint and spinal instabilities from hEDS, including brain fatigue, pain, POTS, MCAS and more. -
Bonnie Nasar RDN
“How to Build an EDS Plate: Feel Better with Food”? -
Presenter: Jeannie Di Bon MA PMA-CPT
Title: “A Pain in the Hypermobile Neck” -
Presenter: Dr. Eli Penn
Title: hEDS and the Gastrointestinal Tract -
Pradeep Chopra, MD
“Management of Long Covid with EDS” -
Eloise Stager, LMT, CST-D
“The Role of CranioSacral Therapy in
Pain Management and ANS Regulation” -
Anne Maitland, M.D., Ph.D
“Beyond allergies- mast cell activation diseases!” -
Clair Francomano MD
“EDS and Hypermobility Spectrum Disorders – Overview of Diagnosis and Management” -
Sonny Mullen
“A Guide to Medical Fundraising” -
Karina Sturm
New Feature-Length Ehlers-Danlos Documentary
“We Are Visible” -
Podcast Interview with Karina Strum
‘We are Visible’ Podcast Interview -
Andrea Julian
“Starting and Maintaining a Successful Support Group” -
Maria Dastur, M.B.A.
Organizing and Managing your Facebook and Social Media -
Alan G. Pocinki M.D.
Sleep Disorders in EDS -
Ross A. Hauser, MD
Consequences and Resolution of Joint Instabilities in H- EDS -
Bonnie Nasar RDN
“Optimizing nutrition to Decrease Brain Fog, Fatigue, & Pain” -
Jeannie Di Bon. MA, PMA-CPT
“How can Pilates help with my EDS Symptoms” -
Petra Klinge MD
“Managing Life with Neurological Symptoms and EDS” -
Cathy L. Pederson, Ph.D
“Understanding the Relationship between Chronic Illness and Suicide” -
Patrick Agnew DPM
“Foot and Ankle Treatments for EDS” -
Susan Tran, PhD
“Partnering with Families to Improve Functioning in Youth with EDS” -
Paolo A Bolognese, MD
Chiari I Malformation, EDS, and Craniocervical Instability -
Lauren Stiles, JD
“Understanding the Relationship Between Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome” -
Jordan Tishler, MD
Medical Cannabis – Pain Relief for EDS -
Jeannie Di Bon, MA, PMA-CPT
“Strengthen and Control Your Hypermobile Core With Pilates” -
John Ferman
Online EDS Physician CME Education -
Anne Maitland, MD, PhD
“Mast Cell Activation Disorder” -
Joshua Milner, M.D.
“Update on Tryptase Research” -
Delia Chiaramonte, MD
“Practical Stress Management: A Mind-Body Approach” -
Manu Sood, MD
Katja Kovacic, MD
“Gastrointestinal Motility Disorders and Cyclic Vomiting” -
Gisela Chelimsky, MD
“Hypermobile EDS and Gastrointestinal Issues” -
Pradeep Chopra, MD
“Management of complex pain in children and adults with EDS” -
Pradeep Chopra, MD
“EDS Pain Management – Connecting the DOTS… part 3” -
Dr. Ajoy Sarkar
“Ehlers-Danlos Syndrome Hypermobility Type in the UK: Missed or Just Misunderstood?” -
Sara Williams, PhD
“Biofeedback: Training your Body to Relax” -
Jan Dommerholt, DPT
“Physical Therapy for EDS – Part 2”
Why does it hurt all of the time? -
Markus-Frederik Bohn, PHD
“Tenascin X and Ehlers-Danlos Syndrome” -
Dr. Marco Castori
“Multidisciplinary Diagnostic and Management Approach to the EDS Patient”
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Dan Doherty — YouScript / Genelex Corp.
“Pharmacogenetic Testing to Assess Altered Drug Metabolism”
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Diane O’Leary, PhD
“All in Your Head”: The Problem of Psychogenic Diagnosis for Ehlers-Danlos Patients
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John Ferman and Deanna Hamm
“World-Wide EDS Survey Results” by EDS Awareness
(2544 respondents from 26 countries) -
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Karen Foulks, OTR/CHT
Jesse Garris, Silver Ring Splint Co.“Anatomy and SilverRing™ Splints for Ehlers-Danlos Hands”
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Trish Meegan, DPT, L, ATC
“Physical Therapy for EDS: Including how your posture and thorax/ribcage affects your PT program”
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Dr. Clive Bridgham
“Chronic Pain Alternatives – with focus on inflammation and nutrition”
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Kevin Muldowney, MSPT
“Physical Therapy Protocol for Ehlers-Danlos Syndrome” (using the new EDS Physical Therapy Book)
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Frank Gargano PT, DPT, OCS, CIDN, MCTA, CWT
“Dry Needling for EDS Pain Management: Can muscle performance be improved?”
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Dr. Richard Barnum
“EDS and Psychiatric Illness Misdiagnoses” -
Dr. Anne Maitland
“Mast Cell Activation Syndrome” Part 1 -
Dr. Alan Pocinki
“Chronic Pain, Poor Sleep, Depression, and Fatigue in EDS” -
Dr. Derek Neilson
“Proving the obvious: Next Steps for the Demystification
of the Ehlers-Danlos Hypermobility Type” -
Dr. Peter Rowe
“Managing Orthostatic Intolerance in EDS” -
Prof Joel Lamoure, RPh., DD., FASCP
“Medical Psychiatry in Pain Management” -
Eric Palmer, Orthotist
“Bracing for EDS” -
Dr. John Mitakides
“TMJ, Cervical Instability and EDS” -
Dr. Staci Kallish
“Cardiac Manifestations in EDS” -
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Presenter: Kevin Muldowney, PT Click here for a link to the announcement page Video link is on this page
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Presenter: Michael, Healy, DPT Click here for a link to the announcement page Video link is on this page
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Dr. Kenneth Goldschneider
Pain Management for EDS
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