Organization: Chronic Pain Partners (501(c)(3) nonprofit)
Position Type: Part-Time, Contract (Stipend)
Open Roles: 1
Start Date: May 1, 2026

About Us

EDS Awareness is the primary initiative of Chronic Pain Partners, a patient-led nonprofit and trusted voice in the Ehlers-Danlos community since 2011.

Our mission is not only to raise awareness of Ehlers-Danlos Syndromes (EDS), but to support patients in navigating life after diagnosis. Through our articles, newsletters, multimedia, and community storytelling, we help patients, medical professionals, and the broader community better understand EDS and its wide range of comorbid conditions.

By translating emerging research and connecting patients with experts, we turn complex medical information into clear, actionable knowledge. We also provide practical guidance for everyday life with EDS, from addressing medical trauma to identifying effective supportive tools.

Our goal is to ensure every patient has access to the support, information, and resources they need to live a full and active life with EDS.

Position Overview

We are seeking reliable, mission-driven writers to contribute high-quality content for our newsletter and digital platforms. Topics will focus on patient education, lived experience, and emerging insights relevant to the EDS community. Writers will respond to assigned topics and are encouraged to pitch original ideas aligned with our mission and editorial focus.

Compensation

This is a stipend-based position with compensation of $500 per month, in exchange for approximately 1–2 articles per month (final scope to be agreed upon).

Key Responsibilities

• Write clear, engaging, and accurate articles for a patient audience
• Collaborate with the editorial team on topics and revisions
• Meet agreed-upon deadlines
• Incorporate editorial feedback in a timely manner

Qualifications

• Experience in writing, journalism, blogging, advocacy, or related fields
• Knowledge of Ehlers-Danlos Syndromes or chronic illness preferred
• Strong communication and storytelling skills
• Ability to work independently and meet deadlines
• Reliable, collaborative, and responsive to feedback

Why Join Us?

• Contribute to a meaningful cause and support a global patient community
• Reach a large, engaged audience
• Be part of a mission-driven, patient-led organization

How to Apply

Please submit:

• A brief statement of interest
• Your CV
• 1-2 writing samples

Email your Application to: Jacqueline.eds.awareness[at]gmail.com

Chronic Pain Partners is an equal-opportunity organization, and we welcome writers from diverse backgrounds, including those with disabilities. Applications from people living with EDS are especially encouraged and will be given priority.