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The following articles are dedicated to those loved ones who suffered with EDS and are no longer with us. May they finally rest in peace.

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    Upcoming and Previous Webinar Speakers

    • webinar-image

      Ross A. Hauser, MD
      10 Low-cost ways to improve symptoms of peripheral joint and spinal instabilities from hEDS, including brain fatigue, pain, POTS, MCAS and more.

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    • webinar-image

      Bonnie Nasar RDN
      “How to Build an EDS Plate: Feel Better with Food”?

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    • webinar-image

      Presenter: Jeannie Di Bon   MA PMA-CPT
      Title: “A Pain in the Hypermobile Neck”

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    • webinar-image

      Presenter: Dr. Eli Penn
      Title: hEDS and the Gastrointestinal Tract

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    • webinar-image

      Pradeep Chopra, MD
      “Management of Long Covid with EDS”

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    • webinar-image

      Eloise Stager, LMT, CST-D
      “The Role of CranioSacral Therapy in
      Pain Management and ANS Regulation”

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    • webinar-image

      Anne Maitland, M.D., Ph.D
      “Beyond allergies- mast cell activation diseases!”

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    • webinar-image

      Clair Francomano MD
      “EDS and Hypermobility Spectrum Disorders – Overview of Diagnosis and Management”

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    • webinar-image

      Sonny Mullen
      “A Guide to Medical Fundraising”

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    • webinar-image

      Karina Sturm
      New Feature-Length Ehlers-Danlos Documentary
      “We Are Visible”

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    • webinar-image

      Podcast Interview with Karina Strum
      ‘We are Visible’ Podcast Interview

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    • webinar-image

      Andrea Julian
      “Starting and Maintaining a Successful Support Group”

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    • webinar-image

      Maria Dastur, M.B.A.
      Organizing and Managing your Facebook and Social Media

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    • webinar-image

      Alan G. Pocinki M.D.
      Sleep Disorders in EDS

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    • webinar-image

      Ross A. Hauser, MD
      Consequences and Resolution of Joint Instabilities in H- EDS

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    • webinar-image

      Bonnie Nasar RDN
      “Optimizing nutrition to Decrease Brain Fog, Fatigue, & Pain”

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    • webinar-image

      Jeannie Di Bon. MA, PMA-CPT
      “How can Pilates help with my EDS Symptoms”

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    • webinar-image

      Petra Klinge MD
      “Managing Life with Neurological Symptoms and EDS”

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    • webinar-image

      Cathy L. Pederson, Ph.D
      “Understanding the Relationship between Chronic Illness and Suicide”

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    • webinar-image

      Patrick Agnew DPM
      “Foot and Ankle Treatments for EDS”

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    • webinar-image

      Susan Tran, PhD
      “Partnering with Families to Improve Functioning in Youth with EDS”

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    • webinar-image

      Paolo A Bolognese, MD
      Chiari I Malformation, EDS, and Craniocervical Instability

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    • webinar-image

      Lauren Stiles, JD
      “Understanding the Relationship Between Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome”

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    • webinar-image

      Jordan Tishler, MD
      Medical Cannabis – Pain Relief for EDS

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    • webinar-image

      Jeannie Di Bon, MA, PMA-CPT
      “Strengthen and Control Your Hypermobile Core With Pilates”

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    • webinar-image

      John Ferman
      Online EDS Physician CME Education

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    • webinar-image

      Anne Maitland, MD, PhD
      “Mast Cell Activation Disorder”

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    • webinar-image

      Joshua Milner, M.D.
      “Update on Tryptase Research”

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    • webinar-image

      Delia Chiaramonte, MD
      “Practical Stress Management: A Mind-Body Approach”

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    • webinar-image

      Manu Sood, MD
      Katja Kovacic, MD
      “Gastrointestinal Motility Disorders and Cyclic Vomiting”

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    • webinar-image

      Gisela Chelimsky, MD
      “Hypermobile EDS and Gastrointestinal Issues”

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    • webinar-image

      Pradeep Chopra, MD
      “Management of complex pain in children and adults with EDS”

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    • webinar-image

      Pradeep Chopra, MD
      “EDS Pain Management – Connecting the DOTS… part 3”

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    • webinar-image

      Dr. Ajoy Sarkar
      “Ehlers-Danlos Syndrome Hypermobility Type in the UK: Missed or Just Misunderstood?”

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    • webinar-image

      Sara Williams, PhD
      “Biofeedback: Training your Body to Relax”

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    • webinar-image

      Jan Dommerholt, DPT
      “Physical Therapy for EDS – Part 2”
      Why does it hurt all of the time?

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    • webinar-image

      Markus-Frederik Bohn, PHD
      “Tenascin X and Ehlers-Danlos Syndrome”

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    • webinar-image

      Dr. Marco Castori

      “Multidisciplinary Diagnostic and Management Approach to the EDS Patient”

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    • webinar-image

      Professor Claude Hamonet and Dr. Isabelle Brock

      “A French Perspective on Ehlers Danlos”

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    • webinar-image

      Dr. Delia Chiaramonte

      “An Integrative Approach to Pain Management”

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    • webinar-image

      Dan Doherty — YouScript / Genelex Corp.

      “Pharmacogenetic Testing to Assess Altered Drug Metabolism”

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    • webinar-image

      Dr. Alan Pocinki

      “Psychiatric Misdiagnoses in EDS: When is Anxiety not Anxiety?”

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    • webinar-image

      Dr. William Ericson

      “Orthopedic Issues in the EDS Hand, Wrist and Arm”

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    • webinar-image

      Dr. Norman Marcus

      “EDS & Pain”

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    • webinar-image

      Dr. Lawrence Afrin

      “Mast Cell Activation Syndrome”

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    • webinar-image

      Diane O’Leary, PhD

      “All in Your Head”: The Problem of Psychogenic Diagnosis for Ehlers-Danlos Patients

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    • webinar-image

      John Ferman and Deanna Hamm

      “World-Wide EDS Survey Results” by EDS Awareness
      (2544 respondents from 26 countries)

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    • webinar-image

      Sara Williams, PhD

      “Cognitive Behavioral Therapy as a Coping Skill for EDS”

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    • webinar-image

      Dr. Anne Maitland

      “Mast Cell Activation Syndrome in EDS Patients (Part 2)”

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    • webinar-image

      Dr. Neil Schechter

      “Chronic Pain Hypermobile Children”

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    • webinar-image

      Karen Foulks, OTR/CHT
      Jesse Garris, Silver Ring Splint Co.

      “Anatomy and SilverRing™ Splints for Ehlers-Danlos Hands”

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    • webinar-image

      Dr. Holly Gilmer

      “Chiari Malformation in EDS”

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    • webinar-image

      Dr. Blair Grubb

      “Postural Orthostatic Tachycardia Syndrome (POTs)”

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    • webinar-image

      Trish Meegan, DPT, L, ATC

      “Physical Therapy for EDS: Including how your posture and thorax/ribcage affects your PT program”

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    • webinar-image

      Dr. Patrick Agnew

      “Soft Tissue Surgery in Collagen Disease (for EDS Feet & Ankles)”

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    • webinar-image

      Dr. Petra Klinge

      “Tethered Cord Syndrome in Ehlers-Danlos”

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    • webinar-image

      Kelly Clancy, OT

      “New and Emerging Manual Therapy Approaches for EDS”

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    • webinar-image

      Dr. Clive Bridgham

      “Chronic Pain Alternatives – with focus on inflammation and nutrition”

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    • webinar-image

      Kevin Muldowney, MSPT

      “Physical Therapy Protocol for Ehlers-Danlos Syndrome” (using the new EDS Physical Therapy Book)

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    • webinar-image

      Dr. Mitzi Murray

      “How, Why and When: Genetic Testing in EDS for the Non-Geneticist”

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    • webinar-image

      Ellen Lenox Smith

      “Living Life Again with Dignity Using Medical Marijuana”

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    • webinar-image

      Dr. Joan Stoler

      “Update on Complications and Rare Forms of EDS”

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    • webinar-image

      Jennifer Ortiz, MPT, WSC

      “Physical Therapy for Sexual Dysfunction in EDS”

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    • webinar-image

      John Ferman

      “Support Groups for Ehlers-Danlos Syndrome”

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    • webinar-image

      Dr. John Mitakides

      “Musculoskeletal Headaches in EDS”

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    • webinar-image

      Dr. Patrick Agnew

      “Foot & Ankle Issues with EDS”

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    • webinar-image

      Dr. Hal Dietz

      “Connective Tissue Disorder Research”

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    • webinar-image

      Dr. Theoharis Theoharides

      “Mast Cell Disorders”

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    • webinar-image

      Dr. Brad Tinkle

      “Introduction to Ehlers-Danlos Syndrome”

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    • webinar-image

      Dr. Ronald Jaekle

      “Ehlers-Danlos and Pregnancy”

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    • webinar-image

      Dr. Manu Sood

      “Gastrointestinal Disorders in EDS”

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    • webinar-image

      Dr. Forest Tennant

      “Managing Centralized Intractable Pain in Ehlers-Danlos”

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    • webinar-image

      Cynthia Allen, GCFP, STMI

      “The Feldenkrais Method”

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    • webinar-image

      Dr. Mark E. Lavallee

      “Exercise is Medicine”

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    • webinar-image

      John Ferman

      “Support Groups for Ehlers-Danlos Syndrome”

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    • webinar-image

      Dr. Howard R. Epps

      “Orthopaedic Considerations in EDS”

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    • webinar-image

      Jan Dommerholt, DPT

      “Physical Therapy for Ehlers-Danlos, Part 1”

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    • webinar-image

      Dr. Henry Burkholder

      “Postural Orthostatic Tachycardia Syndrome (POTs) and EDS”

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    • webinar-image

      Dr. Peter Byers

      “Vascular Ehlers-Danlos Syndrome / EDS type IV”

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    • webinar-image

      Subinoy Das, MD, FACS, FARS

      “Sinus Care for Ehlers-Danlos Syndrome”

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    • webinar-image

      Frank Gargano PT, DPT, OCS, CIDN, MCTA, CWT

      “Dry Needling for EDS Pain Management: Can muscle performance be improved?”

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    • webinar-image

      Diana Lebron, MD

      “Headaches and Ehlers-Danlos Syndrome”

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    • webinar-image

      Shweta Dhar, MD, MS, FACMG

      “Coordination of Care in Adults with EDS”

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    • webinar-image

      Kathleen Kane, ESQ

      “Applying for Disability”

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    • webinar-image

      Dr. Richard Barnum
      “EDS and Psychiatric Illness Misdiagnoses”

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    • webinar-image

      Dr. Anne Maitland
      “Mast Cell Activation Syndrome” Part 1

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    • webinar-image

      Dr. Alan Pocinki
      “Chronic Pain, Poor Sleep, Depression, and Fatigue in EDS”

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    • webinar-image

      Dr. Derek Neilson
      “Proving the obvious: Next Steps for the Demystification
      of the Ehlers-Danlos Hypermobility Type”

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    • webinar-image

      Dr. Peter Rowe
      “Managing Orthostatic Intolerance in EDS”

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    • webinar-image

      Prof Joel Lamoure, RPh., DD., FASCP
      “Medical Psychiatry in Pain Management”

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    • webinar-image

      Eric Palmer, Orthotist
      “Bracing for EDS”

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    • webinar-image

      Dr. John Mitakides
      “TMJ, Cervical Instability and EDS”

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    • webinar-image

      Dr. Staci Kallish
      “Cardiac Manifestations in EDS”

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    • webinar-image

      “EDS and Pain… Connecting the Dots” Part 2

      Pradeep Chopra, MD

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    • webinar-image

      Presenter: Kevin Muldowney, PT Click here for a link to the announcement page Video link is on this page

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    • webinar-image

      Presenter: Michael, Healy, DPT Click here for a link to the announcement page  Video link is on this page

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    • webinar-image

      Dr. Kenneth Goldschneider
      Pain Management for EDS

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