About EDS Wisconsin, Inc.

EDS Wisconsin, Inc. was organized in April 2017

and is Fiscally Sponsored by Chronic Pain Partners, also known as EDS Awareness.

In addition, EDS Wisconsin’s first educational event in May 2017 was fiscally sponsored by EDS Wellness.

The Mission of EDS Wisconsin, Inc is to provide support and resources to Wisconsin patients and medical professionals about Ehlers-Danlos syndromes and related conditions via education and research.

Our Vision is a better Wisconsin where EDS and related conditions are fully understood, treated and supported.

EDS Wisconsin – Strengthening Connections!

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EDS Wisconsin has divided the state into smaller, more manageable regions. These regions are: Madison, Milwaukee, Wausau, Northeastern, and La Crosse Areas. We also forming a Kids & Teens Group and Online Support Group Meetings!

We are currently looking for a leader for the Northeastern Area Support Group. If you are interested in this opportunity, please fill out this Volunteer Application.

You can express your interest in any or all Support Group’s here.

Board Members:

Tammy Kosbab, President
Tammy is passionate about helping those with EDS and related disorders since watching her mother suffer and then pass away in 2004 without ever knowing the cause of her ailments. In 2009, Tammy was diagnosed with what is formerly called “Type 2” or Mild Classical Type of EDS. She has attended 2011 and 2012 EDNF Conferences, the 2016, 2017, and 2018 Ehlers Danlos Society Global Learning Conference, and EDS Wellness’ “Wellapalooza” Integrative Health and Wellness Conference in 2017. She is the creator and administrator for Ehlers-Danlos & Joint Hypermobility on Facebook, which currently has 900 members. Tammy went to school for Healthcare Management so she could help others with EDS. She graduated magna cum laude in 2016, and soon after she was elected to the Board of Directors for Ehlers-Danlos Network CARES. She is currently the Vice President and Treasurer for EDS Wellness, and she is working on her Master’s degree in Health Law & Policy at Hofstra University Maurice A Dean School of Law. In the past, she had been a successful Entrepreneur and salon owner for over 9 years.

Steve Swierczynski, Treasurer
Steve is a successful entrepreneur: Fishing Hot Spots, Inc., Fishidy, EDS Wisconsin, and others. He has served on numerous Boards and Committees in business and educational settings. He is a family oriented person who has a personal and passionate connection to EDS.

Tsilos Schoener, Secretary
Tsilos graduated with a Juris Doctorate degree in 2007 from UW Madison Law School. She also graduated with double majors from UW Milwaukee with Honors. Tsilos has family members who have been diagnosed with EDS. She has been diagnosed with Undifferentiated Connective Tissue Disorder, and related conditions Sjogren’s & Psoriatic Arthritis Mutilans.

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