EDS Friends of The Chronic & Rare Coalition

The Chronic & Rare Coalition is a Community Organization formed to provide support to those living with ANY chronic OR rare condition. This organization is affiliated with EDS Awareness. This community organization’s strategy is intended to resolve the treatment challenges that chronic and/or rare disease patients experience. This group also exists to help find possible links between common Comorbidities. An example of an EDS comorbidity that has been observed is the rare condition known as Familial Periodic Paralysis. Our organization helps to raise awareness of EDS comorbidities while also providing a support network for any chronic or rare condition in ANY location. The community organization is based in Phoenix, Az.