About Carolinas EDS, Chiari and More Support Group
Our Group is in the early stages of creation. Our mission is to help those with Hyper Mobility Syndrome such as Ehlers Danlos Syndrome (EDS) and related disorders like Chiari Malformation, Syringomyelia, Cranial Cervical Instability, Mast Cell Disorders, among others.
We want to be a source of information especially providing you with local resources in the Carolinas and surroundings. We also want to offer those caregivers of EDSers to have a place where they can relate to others going through the same problems.
Most importantly we want to feel that we are not alone in this journey and that together we can improve the quality of life of those with the conditions. At the same time that we raise awareness in the medical industry as well as those who have yet to be diagnosed and are struggling in silence.
FB group for Adults with EDS: <a href=
Ehlers Danlos Syndrome “https://www.facebook.com/groups/152615741473177/”>https://www.facebook.com/groups/152615741473177/
Online Forum for EDS: http://www.inspire.com/groups/ehlers-danlos-national-foundation/
Multiple Conditions: Ehlers-Danlos Syndrome and Autoimmune Disease Group (Lupus, Sjorgens, MCTD)
Beyond the Measurement, Chiari, EDS & Chiari w/EDS Support Group