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The EDS Back-to-School Advocacy Toolkit

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Webinars Schedule

Alt text: EDS Awareness webinar graphic for “The Invisible Epidemic: The Structural Blueprint of Hypersensitivity and Tissue Fragility,” Tuesday, September 22 at 7:00 p.m. EST, with Q&A. Includes the EDS Awareness logo, a speaker headshot, and text listing Dr. Anne Maitland, Medical Director of the MUSC Ehlers-Danlos Clinic, Allergy/Immunology.

FREE Webinar Sept 22nd: The Invisible Epidemic: The Structural Blueprint of Hypersensitivity and Tissue Fragility

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Webinars

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EDS Awareness is the primary initiative of Chronic Pain Partners, a patient-led nonprofit and a trusted voice in the Ehlers-Danlos community since 2011. Our mission is not only to raise awareness of Ehlers-Danlos Syndromes, but to support patients in navigating life after diagnosis.

Through our articles, newsletters, multimedia, and community storytelling, we help patients, medical professionals, and the broader community better understand EDS and its wide variety of comorbid conditions. By translating emerging research and connecting patients with experts, we turn complex medical information into clear, actionable knowledge that patients can use. We also offer practical guidance for everyday life with EDS, from addressing medical trauma to identifying the best supportive tools.

At EDS Awareness, our goal is to ensure every patient has the support and resources they deserve to live a full and active life with EDS.

Chronic Pain Partners, a US-based non-profit 501(c)(3) organization.

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