Organization: Chronic Pain Partners (501(c)(3) nonprofit)
Position Type: Volunteer (unpaid)

About Us

EDS Awareness is the primary initiative of Chronic Pain Partners, a patient-led nonprofit and trusted voice in the Ehlers-Danlos community since 2011.

Our mission is not only to raise awareness of Ehlers-Danlos Syndromes (EDS), but to support patients in navigating life after diagnosis. Through our articles, newsletters, multimedia, and community storytelling, we help patients, medical professionals, and the broader community better understand EDS and its wide range of comorbid conditions.

By translating emerging research and connecting patients with experts, we turn complex medical information into clear, actionable knowledge. We also provide practical guidance for everyday life with EDS—from addressing medical trauma to identifying effective supportive tools.

Our goal is to ensure every patient has access to the support, information, and resources they need to live a full and active life with EDS.

Position Overview

We are seeking a science and medical writer to translate emerging research and complex medical topics into clear, accurate, and engaging content for a patient audience.

This role focuses on breaking down new studies, explaining mechanisms, and helping readers understand the “why” behind symptoms, treatments, and evolving research, without losing scientific integrity.

Topics may include new research on EDS, related conditions, treatment approaches, and deeper dives into complex or controversial topics (e.g., vascular issues, autonomic dysfunction, or emerging technologies).

Key Responsibilities

• Commit to writing up to three high-quality articles per year (topics to be discussed with the media team).
• Translate medical research and complex concepts into accessible, patient-friendly articles.
• Review and interpret scientific papers, clinical discussions, and emerging research.
• Ensure accuracy while maintaining readability and engagement.
• Collaborate with the editorial team on topic selection and framing.
• Incorporate feedback and revisions in a timely manner.

Qualifications

• Background in healthcare, science, research, science communication, or related field 

• Experience writing about science, medicine, or health topics
• Strong ability to interpret and explain research studies
• Excellent writing skills with the ability to simplify complex information
• Understanding of Ehlers-Danlos Syndromes, dysautonomia, or related conditions strongly preferred
• Ability to balance nuance, accuracy, and clarity
• Reliable, responsive, and collaborative
• Experience writing for patient or general audiences
• Familiarity with evaluating quality of medical evidence

Why Join Us?

• Help shape how patients understand complex and emerging medical information
• Contribute to a trusted, patient-led platform
• Reach a large, engaged audience seeking clarity and guidance
• Be part of a mission-driven, thoughtful editorial team

How to Apply

Please submit:
• A brief statement of interest and CV
• 1–2 writing samples (preferably science or health-related)

Applications are reviewed on a rolling basis.